Heel prick test storage and use

The request was successful.

Dear Cardiff and Vale University Local Health Board,

Please accept this as a request under the freedom of information act. the subject of interest is the heel prick test (guthrie card). please answer the following:

(1) from which date did your centre first start testing?
(2) from which date did your centre first start storing the cards?
(3) approximately how many cards do you currently hold in storage?
(4) what are the purposes of storing cards once they have been tested? is research or further testing conducted on the cards and does any of the generic information pertained on the cards get used?
(5) are there any instances where use of the stored cards lead to families being contacted?
(6) do you have a policy for destruction of the cards?
(7) have any cards been destroyed? if so, who requested this?
(8) have any cards or their information/genetic material been released to any government agency, police, coroners or other party? if so, who may order a release of such information.
(9) what generic information is available on each card?
(10) what information do you store electronically from these cards?

Yours faithfully,

charlie:faulknor

FOI Requests (Cardiff and Vale UHB - Information Governance), Cardiff and Vale University Health Board

Dear Charlie Faulknor.

 

I am writing in response to your e-mail below requesting information from
Cardiff and Vale University Health Board (UHB). Please note this request
is being dealt with in accordance with the Freedom of Information Act
2000.

 

 

The Freedom of Information Act 2000 gives individuals the right to access
official information. The Act allows the right to request any recorded
information held by a public authority, such as Cardiff and Vale UHB.  A
request can be made for any information it is thought a public authority
may hold. The right only covers recorded information which includes
information held on computers, in emails and in printed or handwritten
documents as well as images, video and audio recordings. 

 

A request can take the form of a question, rather than a request for
specific documents, but an authority does not have to answer your question
if this would mean creating new information or giving an opinion or
judgment that is not already recorded.

 

As you are making a request under the Freedom of Information Act the UHB
will consider your request in accordance with the Act and in line with the
appropriate guidance issued by the Information Commissioner as detailed
below.

 

The UHB will:

 

• identify which questions amount to requests for information held on
record;  

• be ready to offer advice and assistance that is reasonable in the
circumstances; and  

• provide a response in line with the requirements of the legislation.   

 

I would now like to confirm that your request has been forwarded to the
relevant department to action. A further response will be issued in due
course.   

 

As your request is being dealt with under FoI there is a deadline of 20
working days for response to be issued. Please note I have removed some of
the information contained within your original e-mail to ensure there is
no breach of the Data Protection Act.

 

 

Yours sincerely

 

 

Ann Morgan

Llywodraethu Corfforaethol - Uwch Reolwr Gwybodaeth a Chyfathrebu

Corporate Governance – Senior Information and Communication Manager

Bwrdd Iechyd Prifysgol Caerdydd a'r Fro / Cardiff and Vale UHB

Tel 02920 744870

 

 

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Vanessa Clement-Pugh (Cardiff and Vale UHB - Information Governance), Cardiff and Vale University Health Board

1 Attachment

Dear Charlie Faulknor,

I am writing further to your e-mail below requesting information from Cardiff and Vale University Health Board (UHB) under the Freedom of Information Act 2000.
I can now confirm that the UHB has completed a search of its records and has established it does hold information falling within the confines of your request. Please find attached above the information which can be disclosed which I trust is sufficient for your requirements.
Should you have any queries or need clarification on any aspect of this response please do not hesitate to contact me directly.
If you are unhappy with the service you have received in relation to your request and wish to make a complaint or request a review of our decision, you should write to:
Mr Peter Welsh
Board Secretary
Cardiff and Vale University Local Health Board
Executive Headquarters
University Hospital of Wales
Heath Park
Cardiff
CF14 4XW
If you are not content with the outcome of any complaint, you may apply directly to the Information Commissioner for a decision Generally the Information Commissioners Office cannot make a decision unless you have exhausted the complaints procedure provided by Cardiff and Vale UHB.
The Information Commissioner can be contacted at:
The Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF

Yours sincerely

Vanessa Clement-Pugh
Llywodraethu Corfforaethol - Swyddog Rheoli Gwybodaeth
Corporate Governance – Information Governance Officer
Bwrdd Iechyd Prifysgol Caerdydd a'r Fro / Cardiff and Vale UHB
Tel 02920 745624

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