Figures for England and Walesof people permanently receiving maximum hours of care in the home

Sue Treseder made this Freedom of Information request to Independent Reconfiguration Panel
This authority is not subject to FOI law, so is not legally obliged to respond (details).
This request has been closed to new correspondence. Contact us if you think it should be reopened.

Response to this request is long overdue. Although not legally required to do so, we would have expected Independent Reconfiguration Panel to have responded by now (details). You can complain by requesting an internal review.

Dear Independent Reconfiguration Panel,

Care in the home for the chronically sick and or old is to be the standard practice.

When hospitals will only deal with ACUTE NEEDS the PRESENT STATE OF DOMICILLARY CARE WHICH IS NOT FIT FOR PURPOSE now, WILL BE unworkable.

I AM AT 73 YRS MY HUSBAND'S 24/7 CARER WITH 15 hours a week support, which is the Max AVAILABLE, fOR WHICH WE PAY the maximum rate willingly.

My husband is totally bedridden, has no ability to move any part of his body apart from his head and two fingers of one hand --we are not unusual!

However we both need much more help and support.One is a forgotten non- person as far as GPs care - Fortunatly I am physically and medically aware enough to know when things are going wrong- many will not be and prompt discharge from hospital to care in the home where less sophisticated and under staffed teams will produce potential for chaos and disasters.

Acute hospital care only -fine- but the care at home must be as good as available in hospital, after acute treatment finishes and the domicillary teams, medical and support ,must be properly financed, trained well and experienced.

Before this service can be planned accurate figures for those currently being nursed at home and those who care for them considered realistically, problems accepted and solved

Also the needs and numbers of promptly-discharged patients from acute care, studied in the light of fact not fiction.

This is why I ask for the figures available currently for
,
patients and all those who support them in the home.

Also the clinical conditions covered NOW AND PROJECTED and the subsequent needs OF ALL and how these will be met' By
properly trained teams, not as at the moment the odd NVQ OR HARD PRESSED DISTRIC NURSES WITH NO HOSPITAL BACK UP READILY AVAILABLE.

THE RULE OF WHO, WHAT, WHY,WHEN, AND HOW HAS NEVER BEEN MORE VITAL.

AT PRESENT THERE IS NO REALISM IN WHAT IS PUT IN PLACE AND THEN EVERYONE JUST 'MANAGES'IN AN UNDER FUNDED ILL-CONSIDER
SYSTEM BASED ON BORROWING FROM PETER--

The proposed, 'WORKING TOGETHER POLICY' IS MERELY A ROUTE TO PASSING THE BUCK AND NO SPECIFIC CHAIN OF REAL RESPONSIBILITY SPECIFIED.

I FEAR FOR THE FUTURE OF PEOPLE IN OUR POSTION, NOW AND IN THE FUTURE.

Yours faithfully,

SUE M. TRESEDER(MRS)