Please accept this email as acknowledgement that NHS Western Isles has
received your FOI request below. 

As per the Freedom of Information (Scotland) Act 2002, we will aim to meet
your request within 20 days from receiving it.  In the eventuality of a
delay arising, I will contact you advising of this and the reason for it. 

Regards,

Tina

NHS Western Isles / 37 South Beach Street / Stornoway / Isle of Lewis
/ HS1 2BB

[NHS Western Isles request email]  / Tel: 01851 708031 / Fax: 01851 702036

══════════════════════════════════════════════════════════════════════════

From: Oliver Caswell <[FOI #935444 email]>
Sent: 12 January 2023 3:51 PM
To: WI FOI-Requests <[NHS Western Isles request email]>
Subject: Freedom of Information request - Epilepsy Treatment
 
Dear Western Isles NHS Board,

I would like to please request the following information, with regards to
treatment of Epilepsy in your trust/ board.

In the last 12 months of available data:

1a. What number of unique patients have been treated for Lennox-Gastaut
syndrome, Dravet Syndrome and Tuberous Sclerosis Complex? Please give
answers for each condition separately.

1b. For each indication (Lennox-Gastaut syndrome, Dravet Syndrome and
Tuberous Sclerosis Complex), what number of these have been treated in a
paediatric environment?

2a. How many patients have been treated with Epidyolex in a paediatric
environment?

3a. Can you please detail which NHS Trusts/ Health Boards these patients
have been referred from?

Yours faithfully,
Oliver Caswell

-------------------------------------------------------------------

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[FOI #935444 email]

Is [NHS Western Isles request email] the wrong address for Freedom of Information
requests to Western Isles NHS Board? If so, please contact us using this
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[4]https://www.whatdotheyknow.com/help/ico-...

Please note that in some cases publication of requests and responses will
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-------------------------------------------------------------------

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Please find attached NHS Western Isles response to your FOI request
below. 
Regards,
Tina

NHS Western Isles / 37 South Beach Street / Stornoway / Isle of Lewis
/ HS1 2BB

[NHS Western Isles request email]  / Tel: 01851 708031 / Fax: 01851 702036

══════════════════════════════════════════════════════════════════════════

From: Oliver Caswell <[FOI #935444 email]>
Sent: 12 January 2023 3:51 PM
To: WI FOI-Requests <[NHS Western Isles request email]>
Subject: Freedom of Information request - Epilepsy Treatment
 
Dear Western Isles NHS Board,

I would like to please request the following information, with regards to
treatment of Epilepsy in your trust/ board.

In the last 12 months of available data:

1a. What number of unique patients have been treated for Lennox-Gastaut
syndrome, Dravet Syndrome and Tuberous Sclerosis Complex? Please give
answers for each condition separately.

1b. For each indication (Lennox-Gastaut syndrome, Dravet Syndrome and
Tuberous Sclerosis Complex), what number of these have been treated in a
paediatric environment?

2a. How many patients have been treated with Epidyolex in a paediatric
environment?

3a. Can you please detail which NHS Trusts/ Health Boards these patients
have been referred from?

Yours faithfully,
Oliver Caswell

-------------------------------------------------------------------

Please use this email address for all replies to this request:
[FOI #935444 email]

Is [NHS Western Isles request email] the wrong address for Freedom of Information
requests to Western Isles NHS Board? If so, please contact us using this
form:
[1]https://www.whatdotheyknow.com/change_re...

Disclaimer: This message and any reply that you make will be published on
the internet. Our privacy and copyright policies:
[2]https://www.whatdotheyknow.com/help/offi...

For more detailed guidance on safely disclosing information, read the
latest advice from the ICO:
[3]https://www.whatdotheyknow.com/help/ico-...
[4]https://www.whatdotheyknow.com/help/ico-...

Please note that in some cases publication of requests and responses will
be delayed.

If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.

-------------------------------------------------------------------

--------------------------------------------------------------------------------------------------------------------------------------------------------
This email is intended for the named recipient only. If you have received
it by mistake,
please (i) contact the sender by email reply; (ii) delete the email from
your system; .
and (iii) do not copy the email or disclose its contents to anyone.

--------------------------------------------------------------------------------------------------------------------------------------------------------

References

Visible links
1. https://www.whatdotheyknow.com/change_re...
2. https://www.whatdotheyknow.com/help/offi...
3. https://www.whatdotheyknow.com/help/ico-...
4. https://www.whatdotheyknow.com/help/ico-...