Co-proxamol Prescribing Within LMMG

James Kelly made this Freedom of Information request to Midlands and Lancashire Commissioning Support Unit

This request has been closed to new correspondence from the public body. Contact us if you think it ought be re-opened.

The request was partially successful.

Dear Midlands and Lancashire Commissioning Support Unit,
My previous request submitted via this website was acknowledged then ignored, (LMMG Process for Colour Classification/Colour Classification of Medicines).
The reason I use this website is every correspondence is available for public scrutiny.

My request: -
1) How many prescriptions for Co-proxamol have been issued by each of the CCG's within the LMMG Since November 2015?
2) How many patients are receiving Prescriptions for Co-proxamol on a regular basis?
3) Have any sanctions been placed on Doctors who continue to prescribe Co-proxamol?
4) Which company manufactures Co-proxamol?
5) Who supplies Co-proxamol?
6) What is the current price paid for Co-proxamol, and does the price vary between CCG's within LMMG?

Yours faithfully,

James Kelly

MLCSU, Comms (NHS MIDLANDS AND LANCASHIRE COMMISSIONING SUPPORT UNIT), Midlands and Lancashire Commissioning Support Unit

The Coordination Centre has received your email, we will endeavor to
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James Kelly left an annotation ()

Despite acknowledgement of this request Midlands and Lancashire Commissioning Support Unit will not respond any further on this website.

Below is my correspondence via email, unfortunately no further correspondence has been received from them since my last email dated 07 August 2018!

Subject: Re: Request a Further Review (Case reference number: FS50656674) FOI:0039904
Date: Tue, 7 Aug 2018 2:31
From: xxxxxxxxxx
To: MLCSU.FOITeam@nhs.net

Dear Louise Booker,
I believe Blackpool CCG supplied misleading and inaccurate information to the ICO regarding my earlier case review RE: Ref no: FOI-02317-P0B8-FW 9th February 2017 FOI: 0016244.

As the latest information has only recently come to my attention I’m hoping you will review your original .answers.

Yours sincerely,

James Kelly 7460785031

-----Original Message-----

From: Foiteam (NHS MIDLANDS AND LANCASHIRE COMMISSIONING SUPPORT UNIT) <MLCSU.FOITeam@nhs.net>
To: xxxxxxxxxxx
CC: casework <casework@ico.org.uk>
Sent: Mon, 6 Aug 2018 16:03
Subject: RE: Request a Further Review (Case reference number: FS50656674) FOI:0039904
Dear Mr Kelly

Thank you for your email, unfortunately I am unsure of what you are requesting therefore could you provide further information as the reference number you have quoted is from the ICO.

Are you wishing to complain about the response received from NHS Blackpool CCG or the ICO?

Kind regards
Louise Booker
FOI/SARS Manager
NHS Midlands and Lancashire CSU

From: xxxxxxxxx
Sent: 04 August 2018 10:21
To: Foiteam (NHS MIDLANDS AND LANCASHIRE COMMISSIONING SUPPORT UNIT) <MLCSU.FOITeam@nhs.net>
Subject: Re: Request a Further Review (Case reference number: FS50656674) this request is separate from my current complaint.

Recent enquiries have led me to believe your previous responses to my request for review from Louise Booker et al (Case reference number: FS50656674) had been totally unacceptable and a deliberate attempt to mislead me and the ICO!

-----Original Message-----

From: Foiteam (NHS MIDLANDS AND LANCASHIRE COMMISSIONING SUPPORT UNIT) <MLCSU.FOITeam@nhs.net>
To: xxxxxxxxxx
CC: casework <casework@ico.org.uk>
Sent: Fri, 3 Aug 2018 15:11
Subject: RE: Request a Further Review (Case reference number: FS50656674)

Dear Mr Kelly
Thank you for your email requesting an internal review, unfortunately we are unable to commence an internal review of your request as we currently have your FOI request still open with Blackpool CCG. We are only able to commence an internal review once you have received your response. Therefore, I am unable to process your request at this time.
If once you receive your response you feel you need further information or would like an internal review then please don’t hesitate to contact us. Please remember to quote the FOI reference number as this will assist us to locate your response.

Kind regards

Louise Booker
FOI/SARS Manager
NHS Midlands and Lancashire CSU

From: xxxxxxxxxxxxxxx
Sent: 02 August 2018 18:22
To: Foiteam (NHS MIDLANDS AND LANCASHIRE COMMISSIONING SUPPORT UNIT) <MLCSU.FOITeam@nhs.net>
Cc: casework@ico.org.uk
Subject: Request a Further Review (Case reference number: FS50656674)

Dear Blackpool CCG,
Please pass this on to the person who conducts Freedom of Information reviews.
I am writing to request an internal review of Blackpool CCG handling of my original FOI request '.

I feel that Blackpool CCG has shown a complete lack of ‘Due Diligence’ in respect of my FOI request regarding their supervision of prescribing of Co-proxamol and your response to my questions!

Recent enquiries have led me to believe previous responses to my request for review from Louise Booker et al had been totally unacceptable and a deliberate attempt to mislead me and the ICO!

Re: - Freedom of Information Act 2000 (FOIA) Decision notice Reference: FS50656674 Date: 02 May 2017

I feel that Blackpool CCG had shown a complete lack of ‘Due Diligence’ in respect of prescribing Co-proxamol!

Many other CCG's did recognise and accept that there may be some exceptional patients who may require medication or appliances outside of local policy. e.g. 'Black or Grey listed products'. I would be grateful if you could supply the following information: -
1. Does Blackpool CCG operate a process for requesting approval to continue prescribing Black or Grey drugs?

[Page 2 Q1 ICO Decision Notice] Your Response: No, this response clearly wasn't true!

The IFR Legacy Document remained in place following the demise of the PCT!
[Page 2 Q2 ICO Decision Notice] The decision was originally made in 2004 and the MHRA has not reinstated the license for the product.

There has never been a need to relicense Co-proxamol. The supply had been guaranteed by Caroline Flint MP (Minister for Public Health from 2005 to 2007) and the MHRA for all patients under the ‘Named Patient Scheme!’

Qs 3, 4, 5 and 6 - the CCG does not hold this information; it was prior to the establishment of the CCG.

[Page 4 Para 2 ICO Decision Notice] NHS Blackpool CCG has an up to date Information Governance policy that covers records destruction. There are no records prior to April 2013 held by the CCG.

I certainly believe it wasn’t prudent for any CCG to destroy all the previous documents created by the PCT’s, and I continue to believe this would not have happened to every single document!

All the CCG’s within the LMMG continued to oversee prescriptions throughout the period November 2015 to the present time for certain patients on the ‘Named Patient Scheme’ while totally ignoring other ‘Named Patients’ (The last recorded prescription sanctioned by Blackpool CCG was during May 2018).

Why did Blackpool CCG discriminate between 'Named Patients?
Please remember, the situation in India proved beyond any doubt that Co-proxamol is a very effective drug and could have been imported since February 2017 for £3.00 plus delivery costs!

During October 2017 NHS Clinical Commissioners (NHSCC) and NHS England published a public consultation. “The following treatments are included with the guidance as recommended for no longer being routinely prescribed.” This has resulted in Co-proxamol having its prescribing authorisation withdrawn and appears to be ‘The Final Clearance of the ‘Named Patient Facility!’ This is an ironic situation as the drug could now be imported from India for approximately £3.00 per 100 tablets (+delivery & import charges)! (Co-proxamol was available for import five months before the NHSCC consultation began)!
(I had previously received Co-proxamol supplied by ‘Medreich India’ prior to November 2015 as a ‘Named Patient.’)
https://www.change.org/p/rt-hon-jeremy-h...

My petition launched 27/12/2015; unfortunately only 177 [UK residents] had signed the petition by 01/10/2017. However an additional 464 signatures have appeared since the NHSCC announcement, when CCG’s made their callous decision and forced the totally unnecessary suffering on these long suffering patients!

PresQipp and the NHSCC have never challenged the reasoning or facts provided by MHRA and are not subject to FOI rules, this has resulted in me having to challenge each CCG in my area for answers.

I hope you are willing to reconsider your answers to my original request for review and look forward to receiving your response.

Yours faithfully,

James Kelly

James Kelly left an annotation ()

First Annotation relates to FOI-02317-P0B8-FW dated 9th February 2017 FOI: 0016244.

Response recieved for Ref no: CAS-03576-B5B0B5-BP
27 July 2018

Dear Mr Kelly

Re: Request for information under the Freedom of Information Act 2000
Ref no: CAS-03576-B5B0B5-BP

Thank you for your correspondence dated 16 July 2018 making a request under the Freedom of Information Act 2000 for access to information which may be held by NHS Blackpool Clinical Commissioning Group (CCG).

You requested the following information and our response is detailed below:
1. How many prescriptions for Co-proxamol have been recorded by the CCG since November 2015?
The CCG does not have the number of prescription forms issued, however the number of items that are identified for Co-proxamol are as follows:
Financial Year CCG Items
2014/2015 BLACKPOOL CCG 189
2015/2016 BLACKPOOL CCG 122
2016/2017 BLACKPOOL CCG 79
2017/2018 BLACKPOOL CCG 22

The number of items dispensed over the 12month period cannot tell us how many patients this equates to.
2. How many patients are receiving Prescriptions for Co-proxamol on a regular basis?
The CCG does not have access to this information.
3. How many patients have been referred to their CCG’s via an ‘Individual Patient Activity Funding Request Form’ (or similar) from their Doctor, and how many requests were successful?
The CCG have received 1 request and the outcome is pending.

4. Have any sanctions been placed on Doctors who continue to prescribe Co-proxamol?

Prescribers are advised not to prescribe Co-proxamol as per national guidance from the Medicines and Healthcare products Regulatory Agency (MHRA).

5. Which company manufactures Co-proxamol?

The CCG does not hold this information.

6. Who supplies Co-proxamol?

Community Pharmacies supply Co-proxamol to patients on NHS prescriptions.

7. What is the current price paid for Co-proxamol?

This depends upon the supplier and can vary.

(Case reference number: FS50656674) this request is separate from my current complaint.