To whom it may concern,

I am writing to request, under the Freedom of Information Act 2000, that you please provide the following information regarding the number of patients who joined and left the Gender Identity Development Service (GIDS) over time:

For each financial year in which data are held, please provide:
1. The number of patients who were newly referred to GIDS.
2. The number of patients who left GIDS having received their first appointment with the service.
3. The number of patients who left GIDS without receiving their first appointment while still seeking it (e.g. by passing the age of 18).
4. The number of patients who left GIDS without receiving their first appointment because they no longer wanted GIDS or gender-related healthcare.

Please provide these data for each individual GIDS clinic separately and for the service as a whole (GIDS-wide). Please provide these data separately for patients assigned male at birth and those assigned female at birth, and in combination regardless of sex assigned at birth, at both the GIDS-wide and individual clinic level.

Please provide these data in a spreadsheet file to make it easier to analyse them. Thank you very much for your time and help.

Yours sincerely,
Leo Pritchard

Freedom of Information Requests, Tavistock and Portman NHS Foundation Trust

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Freedom of Information Requests, Tavistock and Portman NHS Foundation Trust

1 Attachment

Dear Leo

Your request for information, as detailed in your email below, has been
handled under the Freedom of Information Act 2000 (FOIA). Please find
attached our response, as a csv file, which has also been pasted below in
text format, for our own ease of reference.

Your Questions:

 1. The number of patients who were newly referred to GIDS.
 2. The number of patients who left GIDS having received their first
appointment with the service.
 3. The number of patients who left GIDS without receiving their first
appointment while still seeking it (e.g. by passing the age of 18).
 4. The number of patients who left GIDS without receiving their first
appointment because they no longer wanted GIDS or gender-related
healthcare.

Explanatory Notes about our response:

 A. The Tavistock and Portman NHS Foundation Trust did not hold data by
GIDS clinic location, as the GIDS did not differentiate its data by
clinic location. GIDS service provision was nationwide and managed as
one service with one waiting list. Individual clinicians would cover
several GIDS clinic locations
 B. The Trust holds GIDS Referral and GIDS Waiting List data from
Financial Year 2001/02 to 2022/23, with the following *exceptions:

•    From July 2021: GIDS referrals from General Practitioners and other
non-CAMHS/paediatric referrers were handled by Arden and GEM CSU on behalf
of NHS England

•    From October 2022 all new referrals from any referrer were redirected
to Arden & GEM CSU.

•    From 23 March 2023, The whole GIDS waiting list and all new referrals
were managed by Arden and GEM. GIDS no longer held or managed the waiting
list for GIDS, the Children and Young People’s Gender Dysphoria Services.

•    NHSE/I are now the data controllers for the AGEM Referral Hub. Should
you wish to contact them directly to learn more about the
referrals/waiting list that they hold, the relevant email address is
[1][email address]

 C. We note your request that the data be provided in Excel format,
however it has been provided as a csv file, in line with guidance
issued by the Information Commissioner’s Office in order to mitigate
risk to personal information. This Trust no longer provides data as
excel spreadsheets/workbooks.
 D. You will appreciate that this data involves low numbers, i.e. equal to
or less than five. Were we to disclose the data requested it could
potentially lead to identification or re-identification of the
individual(s) concerned. Although the month and year alone are not
personal data, we have also to consider whether other information that
is already available, or may become available, to any member of the
public, could be combined with the data requested so as to enable
identification of the individual(s) concerned. We are, therefore,
withholding this information under S.40(2) Personal Information and
showing these low numbers as <5.

Section 40 is an absolute exemption under the Freedom of Information Act
2000, and does not require us to carry out the public interest test.

* GIDS Referrals Annually, by Financial Year

Q1: Annual Referrals to GIDS by Financial Year
Financial AFAB AMAB Not stated Total
Year
2001/02 0 <5 0 <5
2002/03 <5 <5 <5 <5
2003/04 0 0 <5 <5
2004/05 0 <5 <5 <5
2005/06 <5 0 <5 6
2006/07 3 2 6 11
2007/08 11 <5 10
2008/09 13 15 17 45
2009/10 32 42 <5 <5+74
2010/11 59 76 <5 <5+135
2011/12 111 90 9 210
2012/13 176 118 17 311
2013/14 269 193 9 471
2014/15 427 264 0 691
2015/16 931 478 0 1409
2016/17 1379 602 <5 <5+1999
2017/18 1848 716 <5 <5+2564
2018/19 1999 735 19 2753
2019/20 1915 730 101 2746
2020/21 1533 716 152 2401
2021/22 1987 875 724 3586
2022/23 475 219 349 1043
Q2: Patients Discharges after at least 1 GIDS Appt
Financial AFAB AMAB Not stated Total
Year
2009/10 <5 0 0 <5
2010/11 18 18 6 42
2011/12 37 29 <5 <5+66
2012/13 71 51 7 129 The Trust does not
2013/14 172 141 13 326 hold this data for
2014/15 169 99 5 273 years prior to 2009/10
2015/16 288 138 6 432
2016/17 529 247 <5 <5+776
2017/18 600 281 <5 <5+881
2018/19 899 350 6 1255
2019/20 1139 374 16 1529
2020/21 1086 386 27 1499
2021/22 401 115 <5 <5+516
2022/23 544 341 <5 <5+885
2023/24 125 121 <5 <5+246
Total 6079 2691 100 8870
Q3 and Q4: Patients discharged from GIDS without Please note that the
having been seen for an appointment Trust did not track
reasons GIDs patients
were discharged
without being seen
under referral. The
Financial Trust confirms that it
Year AFAB AMAB Not stated Total does not hold this
data.
2005/06 <5 0 0 <5
2006/07 0 <5 <5 <5
2007/08 <5 <5 <5 <5
2008/09 <5 0 0 <5 The Trust does not
2009/10 0 <5 0 <5 hold this data for the
2010/11 8 10 8 26 years prior to 2005/06
2011/12 16 19 7 42
2012/13 <5 9 12 <5+21
2013/14 18 24 1 43
2014/15 28 19 <5 <5+47
2015/16 33 25 0 58
2016/17 112 69 0 181
2017/18 181 82 0 263
2018/19 248 120 <5 <5+368
2019/20 234 89 <5 <5+302
2020/21 199 78 10 287
2021/22 480 201 45 726
2022/23 2836 1124 213 4173
2023/24 762 290 37 1089
Total 5161 2167 345 7673

Please note that information provided under FOIA relates to information
held by this Trust at the date on which the request was made.

We trust that you are satisfied with this response. If you are
dissatisfied then please write to us at [2][Tavistock and Portman NHS
Foundation Trust request email] within 40 working days, quoting the
reference details in the header of this email, and explaining the reason
for your dissatisfaction. The Trust would then appoint a senior manager,
not previously involved in this case, to conduct an internal review of our
original response and advise you of their findings, within 20 working
days, which would include either a revised response, or a rationale for
upholding the original response.

Yours sincerely,

Freedom of Information Team,

Tavistock and Portman
NHS Foundation Trust
Tavistock Centre
120 Belsize Lane
London NW3 5BA
[3]www.tavi-port.org
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From: Leo Pritchard
Sent: Tuesday, December 17, 2024 10:31 PM
To: Freedom of Information Requests
Subject: Freedom of Information request - Changes in GIDS patients over
time

To whom it may concern,

I am writing to request, under the Freedom of Information Act 2000, that
you please provide the following information regarding the number of
patients who joined and left the Gender Identity Development Service
(GIDS) over time:

For each financial year in which data are held, please provide:
1. The number of patients who were newly referred to GIDS.
2. The number of patients who left GIDS having received their first
appointment with the service.
3. The number of patients who left GIDS without receiving their first
appointment while still seeking it (e.g. by passing the age of 18).
4. The number of patients who left GIDS without receiving their first
appointment because they no longer wanted GIDS or gender-related
healthcare.

Please provide these data for each individual GIDS clinic separately and
for the service as a whole (GIDS-wide). Please provide these data
separately for patients assigned male at birth and those assigned female
at birth, and in combination regardless of sex assigned at birth, at both
the GIDS-wide and individual clinic level.

Please provide these data in a spreadsheet file to make it easier to
analyse them. Thank you very much for your time and help.

Yours sincerely,
Leo Pritchard

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