Bardet-biedle Syndrome
Dear Portsmouth Hospitals University NHS Trust,
Could i please request information relating to the below
If you treat Bardet-biedle Syndrome, how many unique patients have you treated in the last 12 months?
What % of these patients get a genetic diagnosis prior to them being referred onto specialist centres?
If you do not treat Bardet-biedle Syndrome, could I request where these patients are referred to?
Yours faithfully,
Ed Fryer
Acknowledgement of Request for information under the Freedom of
Information Act 2000
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Room 0.01
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Queen Alexandra Hospital
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Hampshire
PO6 3LY
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the current Covid-19 pandemic the Trust may not be able to respond to any
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Dear Mr Fryer,
Thank you for your enquiry requesting information under the Freedom of Information Act 2000.
Please find our response to your request attached.
The information supplied to you continues to be protected by copyright. You are free to use it for your own purposes, including for private study and non-commercial research, and for any other purpose authorised by an exception in current copyright law. Documents (except photographs) can be also used in the UK without requiring permission for the purposes of news reporting. Any other reuse, for example commercial publication, would require the permission of the copyright holder.
If you are dissatisfied with the handling of your request, you have the right to ask for an internal review. Internal review requests should be submitted within two months of the date of receipt of the response to your original letter and should be addressed to: Information Governance, De La Court House, Queen Alexandra Hospital, Southwick Hill Road, Portsmouth, Hampshire, PO6 3LY
Please remember to quote the reference number above in any future communications.
Freedom of Information Team
Portsmouth Hospitals University NHS Trust
De La Court House
Queen Alexandra Hospital
Southwick Hill Road
Cosham, Portsmouth
Hampshire PO3 6LY
[Portsmouth Hospitals University NHS Trust request email] (For further requests only)
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www.porthosp.nhs.uk
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