Freedom of Information (FOI)
The Balfour, Foreland Road,
Kirkwall, Orkney, KW15 1NZ
www.ohb.scot.nhs.uk
Ed Fryer
Date: 10/01/2023
Vie email: request-933400-
xxxxxxxx@xxxxxxxxxxxxxx.xxx
Tel: 01856 888 220
Email: xxx.xxxxxxxxxxx@xxx.xxxx
Dear Mr. Fryer,
RE: Freedom of Information Request 202223 / 502 – Bardet-biedle Syndrome
Your Query
Date of Request
January 2023
Could i please request information relating to the below
If you treat Bardet-biedle Syndrome, how many unique patients have you treated in the last 12 months?
What % of these patients get a genetic diagnosis prior to them being referred onto specialist centres?
If you do not treat Bardet-biedle Syndrome, could I request where these patients are referred to?
Response
Please be advised that NHS Orkney is a small remote and rural health board which operates one
hospital – The Balfour.
Patients would not be treated for Bardet-biedle syndrome at the Balfour Hospital.
NHS Orkney residents would initially be seen by the paediatric team at NHS Grampian before onward
referral to a national specialist service.
I hope this helps with your request.
NHS Orkney is a small remote and rural health board within Scotland. All responses to Freedom of
Information requests are collated in accordance with the terms of the Freedom of Information (Scotland)
Act 2002.
Under section 20(1) of the Act, if you are dissatisfied with the way NHS Orkney has dealt with your request,
you have a right to ask for a review of our actions and decisions in relation to your request.
A request for review should be made within 40 working days of receipt of this letter and NHS Orkney will
reply within 20 working days of receipt. Review requests should be sent in writing to Dr Louise Wilson,
Director of Public Health, NHS Orkney, The Balfour, Foreland Road, Kirkwall, Orkney, KW15 1NZ or by e-
mail via xxx.xxxxxxxxxxx@xxx.xxxx.
Orkney NHS Board:
The Balfour, Forelands Road,
Kirkwall, Orkney, KW15 INZ
Chair: Meghan McEwen
Chief Executive: Michael Dickson
Our community, we care, you matter....
House, New Scapa Road,
Caring for the people of Orkney
Orkney NHS Board is the common name of Orkney Health Board
Requests for appeal should be made in writing to: Scottish Information Commissioner, Kinburn Castle,
Doubledykes Road, St Andrews, Fife, KY16 9DS. Telephone: 01334 464610, Fax: 01334 464611, Email:
xxxxxxxxx@xxxxxxxxxxxxxxxxxx.xxxx or on the online appeal portal www.itspublicknowledge.info/Appeal.
FOI responses (subject to the removal of personal information) are published on NHS Orkney’s website at:
http://www.ohb.scot.nhs.uk/foi-response-disclosure-log.
Yours sincerely,
Freedom of Information Officer
NHS Orkney
Orkney NHS Board:
The Balfour, Forelands Road,
Kirkwall, Orkney, KW15 INZ
Chair: Meghan McEwen
Chief Executive: Michael Dickson
Our community, we care, you matter....
House, New Scapa Road,
Caring for the people of Orkney
Orkney NHS Board is the common name of Orkney Health Board
