Bardet-biedle Syndrome
Dear Orkney NHS Board,
Could i please request information relating to the below
If you treat Bardet-biedle Syndrome, how many unique patients have you treated in the last 12 months?
What % of these patients get a genetic diagnosis prior to them being referred onto specialist centres?
If you do not treat Bardet-biedle Syndrome, could I request where these patients are referred to?
Yours faithfully,
Ed Fryer
FOI Request – Acknowledgement of Receipt
I hereby acknowledge receipt of the request below:
Reference number allocated to this request:
202223-502
(Please quote this reference number in any future correspondence relating to this request.)
The official date of your request is:
05/01/2023
A response should be sent to your request no later than:
02/02/2023
Note: NHS Orkney is a small remote and rural health board within Scotland. All responses to Freedom of Information requests are collated in accordance with the terms of the Freedom of Information (Scotland) Act 2002.
The Freedom of Information (Scotland) Act 2002 states that a public authority must inform the applicant in writing whether it holds the requested information and if so, communicate that information to the applicant, promptly, but not later than 20 working days after receipt of the request.
For further details please refer to The Scottish Information Commissioner’s website.
Sent by:
Freedom of Information Office
NHS Orkney
The Balfour,
Foreland Road,
Kirkwall,
KW15 1NZ
Dear Mr Fryer,
Please find attached response to your Freedom of Information request.
Kind regards
Lizzy
Lizzy Walls | Freedom of Information Officer
NHS Orkney
The Balfour | Foreland Road | Kirkwall | KW15 1NZ
Phone: 01856 888220 | Data Protection email – [email address] | Freedom of Information email – [email address]
Please note days of work: Tuesday, Wednesday and Thursday
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