Bardet-biedle Syndrome
Dear Grampian Health Board,
Could i please request information relating to the below
If you treat Bardet-biedle Syndrome, how many unique patients have you treated in the last 12 months?
What % of these patients get a genetic diagnosis prior to them being referred onto specialist centres?
If you do not treat Bardet-biedle Syndrome, could I request where these patients are referred to?
Yours faithfully,
Ed Fryer
Dear Mr Fryer,
Freedom of Information (Scotland) Act 2002
Thank you for your email dated 5 January 2023, requesting information
regarding Bardet-biedle Syndrome. We have recorded this request and are
currently processing it in accordance with the Freedom of Information
(Scotland) Act 2002.
A response to your request for information is due by 2 February 2023.
Please allow for delivery time.
We will contact you again in due course.
Best wishes,
Susie
Susie Nattrass
Information Governance Officer
Information Governance Team
NHS Grampian
Rosehill House
Cornhill Road
Aberdeen
AB25 2ZG
Phone: 01224 551549
[1][NHS Grampian request email]
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Dear Mr Fryer
Please find attached response to your request.
Regards
Chris
Chris Morrice
Senior Information Governance Officer
NHS Grampian
Rosehill House
ARI
AB25 2ZG
Email: [email address]
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This email is intended for the named recipient only. If you have received
it by mistake,
please (i) contact the sender by email reply; (ii) delete the email from
your system; .
and (iii) do not copy the email or disclose its contents to anyone.
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