6min Walking Test Results for Recovered Patients in PACE trial

Queen Mary University of London did not have the information requested.

Dear Queen Mary, University of London and the PACE Trial Management Group

I have been following the PACE trial with interest for a number of years, both as an ME sufferer, and as the relative of two clinical psychologists involved in administering CBT.

I am particularly interested in the results of the 6 min walking test,(as reported in the original PACE paper) and would be grateful if you could provide me with mean and standard deviation results for those who, in your latest paper: 'Recovery from chronic fatigue syndrome after treatments given in the PACE trial.' are considered recovered. Please break these down, if possible into therapy type.

Thank you in advance

Yours faithfully,

Anna Sheridan (Dr)

Queen Mary University of London

We acknowledge receipt of your request and will respond as soon as we can.

Queen Mary University of London

Dear Dr. Sheridan

Thank you for your email of 28th March requesting information about the
PACE trial.

I can confirm that the information you have requested is not held by the
College.

A correspondent to the journal 'Psychological Medicine' has recently made
a similar point about these data in a letter that will be published and
the Principal Investigators of the PACE trial have addressed this in a
reply, which is in press.

If you are dissatisfied with this response, you may ask the College to
conduct a review of this decision.  To do this, please contact the College
in writing (including by fax, letter or email), describe the original
request, explain your grounds for dissatisfaction, and include an address
for correspondence.  You have 40 working days from receipt of this
communication to submit a review request.  When the review process has
been completed, if you are still dissatisfied, you may ask the Information
Commissioner to intervene. Please see [1]www.ico.gov.uk for details.

Yours sincerely

Paul Smallcombe
Records & Information Compliance Manager

References

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1. http://www.ico.gov.uk/

Epson left an annotation ()

They may not already have the data in the form requested, however they do have access to data that would allow for the information requested to be provided. Their response seems somewhat misleading to me.