National evaluation of the Special
Educational Needs and Disability (SEND)
Study Information for Pathfinder Families
The Special Educational Needs and Disability (SEND)
Families of children with Special Educational Needs and Disability (SEND) require
support from a range of services. These services are often delivered by different
agencies or departments. The Pathfinder Programme seeks to bring together some of
these services to reduce the complexities for families with children with SEND.
We are undertaking research to see if this approach works to understand how
improvements can be made to services.
The research aims to understand the views and experiences of families who have
direct experience of the programme as well as those who have experience of existing
services for comparison. As the people with the greatest understanding of the support
we would like you to share your views and experiences – this leaflet gives some
information about why we are doing the research and what it involves.
What does taking part in the study mean?
We are asking you to help us to find out if the new approach works.
do not have to take part in the research but your participation and thoughts
and opinions are very valuable and we would like to include them in the
research. If you say yes now and change your mind later on that is okay.
If you agree to take part, you are likely to be telephoned by someone from Ipsos Mori,
who would ask a series of questions about the support that you and your child receive.
At a later point we may also ask if you would be happy to talk individually to one of our
researchers in more detail, in your home.
We may also access information that professionals collect about your family. The
researchers will look at this information to see if there are differences in your family
situation and experiences after working with the Pathfinder team.
The information you and your family provide will be used with information we collect
from about 1,000 other families to help us to understand whether or not the service is
making a difference in families’ lives.
All information would be kept completely confidential by the researchers.
The results from the study will help to improve the support given to families like yours.
Who is doing the research study?
The Pathfinder programme is funded by the Department for Education and the
Department for Health. The department has asked SQW, Ipsos MORI, OPM and
BPSR to find out how well the Pathfinder team works. SQW, Ipsos MORI, OPM and
BPSR are independent research companies that test how well new approaches work.
They have done lots of similar work for the Department for Education and other
Your information will be kept strictly confidential. All companies work under the Data
Protection Act, which means they keep to strict rules about how they collect, store and
use any information they collect from people who take part in their research. When
the results are reported, no-one will be able to link the results to your family.
What happens next?
Your Pathfinder team will ask you if you are happy to take part in the research. If you
say yes, they will ask you to sign a short form to confirm this. Later we may contact
you to see if you would be willing to talk to a researcher about the service you have
43 Chalton Street,
Ipsos MORI (and BPSR)
79-81 Borough Road
252B Gray's Inn Road