What Covid data does Genomics England have the right to access?

Roedd y cais yn llwyddiannus.

Dear Genomics England Ltd,

I have been researching contracts awarded in response to the Covid-19 pandemic, and came across the following contract, published on 9 March, titled 'User Research - COVID Research Environment'

https://www.find-tender.service.gov.uk/N...

The Government's Testing data policy (https://www.gov.uk/government/publicatio...) says that Covid test data can be used for 'research purposes'.

I would therefore like to ask what Covid-19 data Genomics England has access to. Please can you outline whether any data from Covid-19 testing in the UK can be used for research purposes by Genomics England, and if so, what data specifically?

Yours faithfully,

John Lubbock

[Shared] GE Data Protection, Genomics England Ltd

5 Atodiad

Dear Mr Lubbock

 

Thank you for your request which we are treating as a request for
information under the Freedom of Information Act 2000.

 

You asked:

 

Dear Genomics England Ltd,

 

I have been researching contracts awarded in response to the Covid-19
pandemic, and came across the following contract, published on 9 March,
titled 'User Research - COVID Research Environment'

 

[1]https://www.find-tender.service.gov.uk/N...

 

The Government's Testing data policy
([2]https://www.gov.uk/government/publicatio...)
says that Covid test data can be used for 'research purposes'.

 

I would therefore like to ask what Covid-19 data Genomics England has
access to. Please can you outline whether any data from Covid-19 testing
in the UK can be used for research purposes by Genomics England, and if
so, what data specifically?

 

Yours faithfully,

 

John Lubbock

 

Our response:

 

Genomics England is part of both the GenOMICC and REACT studies which are
researching COVID-19.

 

We process test data only for participants that have consented to have
their data used for this purpose.

 

You can read about our involvement in these studies and the use of test
data by expanding the relevant sections in our Privacy Notice at
[3]https://www.genomicsengland.co.uk/privac....

 

If you are dissatisfied with the handling of your request, you have the
right to ask for an internal review. Internal review requests should be
submitted within two months of the date of receipt of this letter and
should be addressed to [4][email address].

 

Please remember to quote the reference number above in any future
communications.

 

If you are not content with the outcome of the internal review, you have
the right to apply directly to the Information Commissioner for a
decision. The Information Commissioner can be contacted at: Information
Commissioner's Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9
5AF.

 

Yours sincerely

 

David

 

David Birkinshaw​
Senior Data Protection Manager
e:  [email address] |  [5]w: www.genomicsengland.co.uk
a:  Genomics England, Queen Mary University of London, Dawson Hall, London, EC1M 6BQ
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Genomics England is the trading name of Genomics England Limited, a company
registered in England and Wales with registered number 08493132.  Its registered
office is Dawson Hall, Charterhouse Square, London EC1M 6BQ. Genomics England is
registered with the Information Commissioner’s Office, registration number ZA021653.

 

 

References

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1. https://www.find-tender.service.gov.uk/N...
2. https://www.gov.uk/government/publicatio...
3. https://www.genomicsengland.co.uk/privac...
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5. https://www.genomicsengland.co.uk/
6. https://www.facebook.com/genomicsengland
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