Nid ydym yn gwybod a yw'r ymateb mwyaf diweddar i'r cais hwn yn cynnwys gwybodaeth neuai peidio - os chi ywMartin Butcher mewngofnodwch a gadael i bawb wybod.

Services for Foetal Alcohol Spectrum Disorders

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Dear NHS Bolton Clinical Commissioning Group,

This is a request for information submitted under the Freedom of Information Act.

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotland which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

In the light of these government statements that CCGs are responsible for commissioning services I would like to ask:

1) What services has your CCG commissioned to meet the ‘reasonable requirements’ as is your duty under Section 3 NHS Act 2006 of those in your area who have or may have Foetal Alcohol Spectrum Disorders as a result of antenatal exposure to alcohol and what is your CCG doing to secure improvement in the physical and mental health of persons with Foetal Alcohol Spectrum Disorders and for the prevention, diagnosis and treatment of FASD (as is in your power under Section 3A NHS Act 2006)? The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE) for:
a. prevention education following the Chief Medical Officer’s guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the years 2013- 2018 from professionals including, but not limited to, paediatricians, GPs, nurses, psychologists, occupational therapists, speech and language therapists, mental health services and other disability support services to provide specialised intervention services for patients on the FASD spectrum across their lifespan?

2) How is your CCG exercising its duty (as specified under Section 14R NHS Act 2006) to securing “continuous improvement in the quality of services provided” to individuals with Foetal Alcohol Spectrum Disorders “for or in connection with the prevention, diagnosis or treatment” of FASD?
3) What is the budget for commissioned services for FASD in the current financial year? What was the budget in 2013, 2014, 2915, 2016 and 2017?
4) Has your CCG conducted, commissioned or assisted the conduct of research into any matters relating to the causation, prevention, diagnosis or treatment of Foetal Alcohol Spectrum Disorders, as is in your powers according to Section 5 NHS Act 2006 Schedule 1 (paragraph 13).
5) Does your CCG commission services from the National FASD Clinic? If so, what is the budget for this?
6) How are you fulfilling your duty (specified under Section 14Z, NHS Act 2006) to promote education and training related to FASD?
7) Do you have a lead person in your CCG on FASD? Please provide the name of the person responsible.
8) What steps are you taking or have you taken (according to your duty under section 14Z2 of the NHS Act, 2006), to involve individuals with FASD or their caregivers in “planning commissioning arrangements; in the development and consideration of proposals for change; in decisions affecting the operation of commissioning arrangements where implementation would have an impact on the manner in which services are delivered or the range of services available.”?
9) How many inquiries/requests/letters have you received from medical practitioners or patients/families in your area related to FASD in the years 2013-2018?

Thank you in advance for your answers.

Yours faithfully,

Martin Butcher

GMCSU, Foi (NHS GREATER MANCHESTER COMMISSIONING SUPPORT UNIT), NHS Bolton Clinical Commissioning Group

Dear Martin,

Thank you for your recent Freedom of Information request. Your request has been logged with the following reference number:

BOL/FOI/12262NHS Bolton CCG

Should the CCG identified in the table above hold the information that you have requested, we would respectfully ask you not to publish this on any website or in any other publications where:

•a charge may be made to access it
•a subscription is charged to access the site.

The CCG holds the copyright for any information they produce and they are not prepared to authorise its re-use where a charge is made. This is in accordance with the provisions of the Re-Use of Public Sector Information Regulations 2005.

Your request for information is now being processed in accordance with the Freedom of Information Act 2000. It is hoped that a response will be provided to you by no later than 31 July 2018. However, if this is not possible and additional time is required, we will contact you to explain.

Kind regards,

Alex

Patient Services Officer
NHS Greater Manchester Shared Services (hosted by NHS Oldham CCG)

Phone: 0161 212 6270 I Email: [Bolton CCG request email]
Ellen House, Waddington Street, Oldham OL9 6EE
Website: www.gmsharedservices.nhs.uk

Please note that any form of web-based email communication (gmail.com, Hotmail.com, yahoomail.com) has no guaranteed security on the personal and confidential information you have sent and received via this method. Therefore by using this method to send and receive your personal data you will be accepting the risk associated to any potential confidentiality data breach as a result from communicating via the web-based email communications system. Please refer to the data security policy of the email service provider if in doubt.

This email has been scanned for viruses, however we are unable to accept responsibility for any damage caused by the contents. The opinions expressed in this email represent the views of the sender, not NHS Greater Manchester Shared Services unless explicitly stated. If you have received this email in error please notify the sender. The information contained in this email may be subject to public disclosure under the NHS Code of Openness or the Freedom of Information Act 2000. Unless the information is legally exempt from disclosure, the confidentiality of this e-mail and your reply cannot be guaranteed.

dangos adrannau a ddyfynnir

GMCSU, Foi (NHS GREATER MANCHESTER COMMISSIONING SUPPORT UNIT), NHS Bolton Clinical Commissioning Group

1 Atodiad

Dear Martin,

 

INFORMATION REQUESTED UNDER THE FREEDOM OF INFORMATION ACT 2000

 

This email is to inform you of the progress made with your recent request
for the supply of information from NHS Bolton CCG.

 

The information you requested is attached.

 

If you are dissatisfied with the way your request has been handled, please
contact us at the email address above with the specifics of your concerns
and we will conduct an internal review.

 

If you are still dissatisfied with the outcome of the internal review, you
can contact the Information Commissioner at the following address:

 

The Information Commissioner’s Office, Wycliffe House, Water Lane,
Wilmslow, Cheshire, SK9 5AF.

 

Yours sincerely,

 

Alex

 

Patient Services Officer

NHS Greater Manchester Shared Services (hosted by NHS Oldham CCG)

 

Phone: 0161 212 6270 I Email: [1][Bolton CCG request email]

Ellen House, Waddington Street, Oldham OL9 6EE

Website: [2]www.gmsharedservices.nhs.uk 

 

Please note that any form of web-based email communication (gmail.com,
Hotmail.com, yahoomail.com) has no guaranteed security on the personal and
confidential information you have sent and received via this method. 
Therefore by using this method to send and receive your personal data you
will be accepting the risk associated to any potential confidentiality
data breach as a result from communicating via the web-based email
communications system. Please refer to the data security policy of the
email service provider if in doubt.

 

This email has been scanned for viruses, however we are unable to accept
responsibility for any damage caused by the contents. The opinions
expressed in this email represent the views of the sender, not NHS Greater
Manchester Shared Services unless explicitly stated. If you have received
this email in error please notify the sender. The information contained in
this email may be subject to public disclosure under the NHS Code of
Openness or the Freedom of Information Act 2000. Unless the information is
legally exempt from disclosure, the confidentiality of this e-mail and
your reply cannot be guaranteed.

 

dangos adrannau a ddyfynnir

Nid ydym yn gwybod a yw'r ymateb mwyaf diweddar i'r cais hwn yn cynnwys gwybodaeth neuai peidio - os chi ywMartin Butcher mewngofnodwch a gadael i bawb wybod.