Services for Foetal Alcohol Spectrum Disorders

Roedd y cais yn llwyddiannus.

Dear NHS Manchester Clinical Commissioning Group,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Sandra Butcher

GMCSU, Foi (NHS GREATER MANCHESTER COMMISSIONING SUPPORT UNIT), NHS Manchester Clinical Commissioning Group

Dear Sandra,

 

Thank you for your recent Freedom of Information request. Your requests
have been logged with the following reference numbers:

 

MCR/FOI/12409 NHS Manchester CCG
WIG/FOI/12410 NHS Wigan Borough CCG

 

Should the CCGs identified in the table above hold the information that
you have requested, we would respectfully ask you not to publish this on
any website or in any other publications where:

 

·         a charge may be made to access it

·         a subscription is charged to access the site.

 

The CCGs hold the copyright for any information they produce and they are
not prepared to authorise its re-use where a charge is made. This is in
accordance with the provisions of the Re-Use of Public Sector Information
Regulations 2005.

 

Your request for information is now being processed in accordance with the
Freedom of Information Act 2000.  It is hoped that a response will be
provided to you by no later than 20 August 2018. However, if this is not
possible and additional time is required, we will contact you to explain.

 

Kind regards,

 

Alex

 

Patient Services Officer

NHS Greater Manchester Shared Services (hosted by NHS Oldham CCG)

 

Phone: 0161 212 6270 I Email: [1][NHS Manchester Clinical Commissioning Group request email]

Ellen House, Waddington Street, Oldham OL9 6EE

Website: [2]www.gmsharedservices.nhs.uk 

 

Please note that any form of web-based email communication (gmail.com,
Hotmail.com, yahoomail.com) has no guaranteed security on the personal and
confidential information you have sent and received via this method. 
Therefore by using this method to send and receive your personal data you
will be accepting the risk associated to any potential confidentiality
data breach as a result from communicating via the web-based email
communications system. Please refer to the data security policy of the
email service provider if in doubt.

 

This email has been scanned for viruses, however we are unable to accept
responsibility for any damage caused by the contents. The opinions
expressed in this email represent the views of the sender, not NHS Greater
Manchester Shared Services unless explicitly stated. If you have received
this email in error please notify the sender. The information contained in
this email may be subject to public disclosure under the NHS Code of
Openness or the Freedom of Information Act 2000. Unless the information is
legally exempt from disclosure, the confidentiality of this e-mail and
your reply cannot be guaranteed.

 

 

dangos adrannau a ddyfynnir

GMCSU, Foi (NHS GREATER MANCHESTER COMMISSIONING SUPPORT UNIT), NHS Manchester Clinical Commissioning Group

1 Atodiad

Dear Sandra,

 

INFORMATION REQUESTED UNDER THE FREEDOM OF INFORMATION ACT 2000

 

This email is to inform you of the progress made with your recent request
for the supply of information from NHS Wigan Borough CCG.

 

The information you requested is attached.

 

If you are dissatisfied with the way your request has been handled, please
contact us at the email address above with the specifics of your concerns
and we will conduct an internal review.

 

If you are still dissatisfied with the outcome of the internal review, you
can contact the Information Commissioner at the following address:

 

The Information Commissioner’s Office, Wycliffe House, Water Lane,
Wilmslow, Cheshire, SK9 5AF.

 

Yours sincerely,

 

Alex

 

Patient Services Officer

NHS Greater Manchester Shared Services (hosted by NHS Oldham CCG)

 

Phone: 0161 212 6270 I Email: [1][NHS Manchester Clinical Commissioning Group request email]

Ellen House, Waddington Street, Oldham OL9 6EE

Website: [2]www.gmsharedservices.nhs.uk 

 

Please note that any form of web-based email communication (gmail.com,
Hotmail.com, yahoomail.com) has no guaranteed security on the personal and
confidential information you have sent and received via this method. 
Therefore by using this method to send and receive your personal data you
will be accepting the risk associated to any potential confidentiality
data breach as a result from communicating via the web-based email
communications system. Please refer to the data security policy of the
email service provider if in doubt.

 

This email has been scanned for viruses, however we are unable to accept
responsibility for any damage caused by the contents. The opinions
expressed in this email represent the views of the sender, not NHS Greater
Manchester Shared Services unless explicitly stated. If you have received
this email in error please notify the sender. The information contained in
this email may be subject to public disclosure under the NHS Code of
Openness or the Freedom of Information Act 2000. Unless the information is
legally exempt from disclosure, the confidentiality of this e-mail and
your reply cannot be guaranteed.

 

dangos adrannau a ddyfynnir

GMCSU, Foi (NHS GREATER MANCHESTER COMMISSIONING SUPPORT UNIT), NHS Manchester Clinical Commissioning Group

1 Atodiad

Dear Sandra,

 

INFORMATION REQUESTED UNDER THE FREEDOM OF INFORMATION ACT 2000

 

This email is to inform you of the progress made with your recent request
for the supply of information from NHS Manchester CCG.

 

The information you requested is attached.

 

If you are dissatisfied with the way your request has been handled, please
contact us at the email address above with the specifics of your concerns
and we will conduct an internal review.

 

If you are still dissatisfied with the outcome of the internal review, you
can contact the Information Commissioner at the following address:

 

The Information Commissioner’s Office, Wycliffe House, Water Lane,
Wilmslow, Cheshire, SK9 5AF.

 

Yours sincerely,

 

Alex

 

Patient Services Officer

NHS Greater Manchester Shared Services (hosted by NHS Oldham CCG)

 

Phone: 0161 212 6270 I Email: [1][NHS Manchester Clinical Commissioning Group request email]

Ellen House, Waddington Street, Oldham OL9 6EE

Website: [2]www.gmsharedservices.nhs.uk 

 

Please note that any form of web-based email communication (gmail.com,
Hotmail.com, yahoomail.com) has no guaranteed security on the personal and
confidential information you have sent and received via this method. 
Therefore by using this method to send and receive your personal data you
will be accepting the risk associated to any potential confidentiality
data breach as a result from communicating via the web-based email
communications system. Please refer to the data security policy of the
email service provider if in doubt.

 

This email has been scanned for viruses, however we are unable to accept
responsibility for any damage caused by the contents. The opinions
expressed in this email represent the views of the sender, not NHS Greater
Manchester Shared Services unless explicitly stated. If you have received
this email in error please notify the sender. The information contained in
this email may be subject to public disclosure under the NHS Code of
Openness or the Freedom of Information Act 2000. Unless the information is
legally exempt from disclosure, the confidentiality of this e-mail and
your reply cannot be guaranteed.

 

 

dangos adrannau a ddyfynnir

Dear GMCSU, Foi (NHS GREATER MANCHESTER COMMISSIONING SUPPORT UNIT),

Thanks for your responses.

Yours sincerely,

Martin Butcher