Neurology Recall Support

lyndsay eccleston made this Rhyddid Gwybodaeth request to Belfast Health and Social Care Trust (Northern Ireland)

This request has been closed to new correspondence. Contact us if you think it should be reopened.

Mae'r ymateb i'r cais hwn yn hwyr iawn. Yn ôl y gyfraith, ym mhob amgylchiad, dylai Belfast Health and Social Care Trust (Northern Ireland) fod wedi ymateb erbyn hyn. (manylion). Gallwch gwyno drwy yn gofyn am adolygiad mewnol.

lyndsay eccleston

Dear Belfast Trust,

As you will be aware, despite assurances of full transparency, we have not received a formal explanation for the neurology recall and reports such as the RCP report has been hidden from us.

We are left with no option other than to submit freedom of information requests so that we can continue to provide support to affected individuals.

The following questions have been submitted by members of the neurology recall support group & members of the ‘we support Dr Watt’ group.

We would like to thank you in advance for answering these requests.

1. Please provide the terms of reference for all active investigations.

2. For all Neurology, Neuropsychology, Neurophysiology, Neuroradiology & Neuroscience departments over the past 10 years;

(i) Please provide a list of any research funding/grants by date, amount, funding source and reason. Please include applications for funding that may or may not have been awarded.
(ii) Please provide a copy of all members research papers. Please include staff who are no longer employed by the Trust.
(iii) List any funding/grants that were denied/stopped/redacted for any reason.

3. Further to the table previously provided to NITSIP outlining the number of blood patches year on year for the past 10 years, please outline;
(i) The number of patients who received an Epidural Blood Patch & the reason for administration
(ii) If the procedures were administered as an inpatient/outpatient
(iii) The age & gender of patients who received an Epidural Blood Patch
(iv) The Neurologists/Anaesthetists/Surgeons who administered the patches

4. How many blood patch patients have since died?
5. How many patients had blood patch procedures outside of Northern Ireland? How many of these were seen during both recalls?

6. For all neurologists across all Trusts over the past 10 years, please outline;
(i) The total cost of medications prescribed by each neurologist year on year
(ii) The total number of invasive procedures per neurologist

7. For the past 10 years, please provide a year on year breakdown of Functional Neurological Symptom Disorder diagnoses. Please note that in 2013 the name changed from conversion disorder to FNSD or FND. Please outline if these diagnoses came from neurology or psychology.

8. Please provide a copy of the diagnostic criteria for;

(i) Functional Neurological Symptom Disorder
(iv) Spontaneous Intracranial Hypotension
(v) Post Dural Puncture Headache

9. Please provide a detailed timeline of actions from when concerns were first raised in November 2016 to current date.

10. In relation to the multiple investigations, please advise;

(i) What date did the services of Dr Schievink begin?
(ii) How much did Dr Schievink’s services cost?
(iii) Have all blood patch patients received a copy of the notes made by Schievink/Trust in relation to their case?
(iv) Have all blood patch patients received a copy of the internal investigation that pertains to them?
(v) Please provide a copy of the internal investigation, redacting any personal information.
(vi) Please provide a copy of the RCP report, redacting any personal information.

11. In relation to Veritas, please advise;
(i) Who commissioned the services of Veritas?
(ii) What date did this begin?
(iii) Please provide a copy of the report

Yours faithfully,

lyndsay eccleston

Turner, Clark, Belfast Health and Social Care Trust (Northern Ireland)

6 Atodiad

Dear Ms Eccleston

 

Please find attached acknowledgement of your FOI Enquiry

 

Many thanks

 

Clark

 

 

Clark Turner

Communications Officer

Public Liaison Service

Belfast Health and Social Care Trust

E: [1][email address]

T: 028 9504 4919

[2]cid:image009.jpg@01CF8494.4339C740

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Gadawodd lyndsay eccleston anodiad ()

Acknowledgment received

lyndsay eccleston

Dear Turner, Clark,

The response to this request is now outstanding.

Yours sincerely,

lyndsay eccleston

lyndsay eccleston

Dear Clark

As per the Freedom of Information Act, can you please provide a date that the full response can be expected by?

Kind regards,

Lyndsay Eccleston

On Wed, 15 May 2019 at 11:14, Turner, Clark <[email address]> wrote:
Dear Ms Eccleston,

I am still working on this and am investigating what we are in a position to provide in response to your query.

I am sure you appreciate there is a lot of information being asked for which is held by a number of different service areas and departments, and sign off is necessary too.

I hope to have something over soon

Thanks for your patience and understanding

Best wishes

Clark Turner

Dear Belfast Health and Social Care Trust (Northern Ireland),

Please pass this on to the person who conducts Freedom of Information reviews.

I am writing to request an internal review of Belfast Health and Social Care Trust (Northern Ireland)'s handling of my FOI request 'Neurology Recall Support'.

You are now in breach of GDPR. All additional allowances for extra time have now expired.

Please respond promptly.

Yours faithfully,

Lyndsay Eccleston

Hanna, Arlene, Belfast Health and Social Care Trust (Northern Ireland)

Lyndsay

Sorry for the delay in responding to your FOI request. We are almost in a position to provide a response and hope to do so early this week.

Regards

Arlene Hanna
Corporate Communications

Corporate Communication | Nore Villa | Knockbracken Healthcare Park | Saintfield Road | Belfast | BT8 8BH | Tel: (028) 9504 6802 | Email: [email address]

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Hanna, Arlene, Belfast Health and Social Care Trust (Northern Ireland)

4 Atodiad

Dear Lyndsay

Please find attached Trust response.

Regards

Arlene Hanna
Corporate Communications

Corporate Communication | Nore Villa | Knockbracken Healthcare Park | Saintfield Road | Belfast | BT8 8BH | Tel: (028) 9504 6802 | Email: [email address]

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lyndsay eccleston

Dear Belfast Health and Social Care Trust (Northern Ireland),

Please pass this on to the person who conducts Freedom of Information reviews.

I am writing to request an internal review of Belfast Health and Social Care Trust (Northern Ireland)'s handling of my FOI request 'Neurology Recall Support'.

The questions have not been appropriately answered.

Yours faithfully,

lyndsay eccleston

PublicLiaison-SM, Belfast Health and Social Care Trust (Northern Ireland)

Dear Lyndsay,

I am happy to look into this for you.

Please can you send me the enquiry reference number to locate the case you are referring too.

Many thanks

Clark

Clark Turner
Communications Officer
Public Liaison Service
Belfast Health and Social Care Trust
E: [email address]
T: 028 9504 4919

dangos adrannau a ddyfynnir

lyndsay eccleston

Dear PublicLiaison-SM,

Thank you. The reference is FOI/19989

Yours sincerely,

lyndsay eccleston

Turner, Clark, Belfast Health and Social Care Trust (Northern Ireland)

5 Atodiad

Dear Ms Eccleston

 

Thanks for your request for an internal review

 

I will look into this and get back to you

 

Many thanks

 

Clark

 

 

 

Clark Turner

Communications Officer

Public Liaison Service

Belfast Health and Social Care Trust

E: [1][email address]

T: 028 9504 4919

[2]cid:image009.jpg@01CF8494.4339C740

[3]cid:image010.jpg@01CF8494.4339C740

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Turner, Clark, Belfast Health and Social Care Trust (Northern Ireland)

5 Atodiad

Dear Ms Eccleston,

 

Due to the Service Manager being on annual leave we will not be able to
issue results of review on 17 September as planned.

 

The Service Manager returns on 18 September and we will issue review
findings after this date.

 

Many thanks

 

Clark

 

 

 

 

From: Turner, Clark
Sent: 20 August 2019 14:41
To: lyndsay eccleston <[FOI #566590 email]>
Subject: FOI Enquiry - 19989

 

Dear Ms Eccleston

 

Thanks for your request for an internal review

 

I will look into this and get back to you

 

Many thanks

 

Clark

 

 

 

Clark Turner

Communications Officer

Public Liaison Service

Belfast Health and Social Care Trust

E: [1][email address]

T: 028 9504 4919

[2]cid:image009.jpg@01CF8494.4339C740

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lyndsay eccleston

Dear Clark Turner

Can you please provide an update?

Yours sincerely,

lyndsay eccleston

Turner, Clark, Belfast Health and Social Care Trust (Northern Ireland)

Hi there,

 

I am on leave and back in the office Wednesday,  2 October.

 

In my absence, please resend to: [E-bost cais Belfast Health and Social Care Trust (Northern Ireland)]

 

Alternatively the team can be reached on Tel: 028 9504 5888

 

One my colleagues will be able to pick up from there.

 

Thanks

 

Clark

 

 

 

Clark Turner

Communications Officer

Public Liaison

Belfast Health and Social Care Trust

 

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Turner, Clark, Belfast Health and Social Care Trust (Northern Ireland)

Dear Lyndsay

A meeting is scheduled for tomorrow to discuss this matter

Many thanks

Clark

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Turner, Clark, Belfast Health and Social Care Trust (Northern Ireland)

8 Atodiad

Dear Ms Eccleston,

 

Apologies for the delay.

 

Please find attached a response to your request for an internal review.

 

Many thanks

 

Clark

 

 

 

Clark Turner

Communications Officer

Public Liaison Service

Belfast Health and Social Care Trust

E: [1][email address]

T: 028 9504 4919

[2]cid:image009.jpg@01CF8494.4339C740

[3]cid:image010.jpg@01CF8494.4339C740

[4]cid:image011.jpg@01CF8494.4339C740

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[6]HSC core values FINAL logo (all 4 CMYK) vector

 

 

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