Nid ydym yn gwybod a yw'r ymateb mwyaf diweddar i'r cais hwn yn cynnwys gwybodaeth neuai peidio - os chi ywBEN HOLDSWORTH mewngofnodwch a gadael i bawb wybod.

Myelofibrosis Treatment

BEN HOLDSWORTH made this Rhyddid Gwybodaeth request to Alder Hey Children's NHS Foundation Trust as part of a batch sent to 136 authorities

Automatic anti-spam measures are in place for this older request. Please let us know if a further response is expected or if you are having trouble responding.

We're waiting for BEN HOLDSWORTH to read recent responses and update the status.

Dear Alder Hey Children's NHS Foundation Trust,

The following questions are being asked for on behalf of Novartis. The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.
A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).
b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.
A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?
b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:
• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

info.gov, Alder Hey Children's NHS Foundation Trust

Thank you for your email.

We are currently experiencing an extremely high volume of incoming
requests which may result in delays dealing with your email.

We will however aim to action emails at the earliest possible opportunity.

Emails regarding Freedom of Information Act requests should be sent to
[email address]

FOIRequests, Alder Hey Children's NHS Foundation Trust

Dear Mr Holdsworth

Thank you for your request for information under the Freedom of Information Act 2000.

Your request will be dealt with in line with Trust policy and national guidelines and a response will be sent to you in no more than 20 working days.

Regards

Information Governance Team
Alder Hey Children's NHS Foundation Trust

[Alder Hey Children's NHS Foundation Trust request email]

dangos adrannau a ddyfynnir

FOIRequests, Alder Hey Children's NHS Foundation Trust

3 Atodiad

Dear Mr Holdsworth,

 

Please find attached a response to your recent Freedom of Information
request.

 

Regards

 

Information Governance Team

Alder Hey Children’s NHS Foundation Trust

Liverpool Heart & Chest Hospital NHS Foundation Trust

0151 600 1845

[1]signature_2121820037

 

 

References

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FOIRequests, Alder Hey Children's NHS Foundation Trust

3 Atodiad

Dear Mr Holdsworth,

 

Please find attached a response to your recent Freedom of Information
request.

 

Regards

 

Information Governance Team

Alder Hey Children’s NHS Foundation Trust

Liverpool Heart & Chest Hospital NHS Foundation Trust

0151 600 1845

[1]signature_2121820037

 

 

References

Visible links

Nid ydym yn gwybod a yw'r ymateb mwyaf diweddar i'r cais hwn yn cynnwys gwybodaeth neuai peidio - os chi ywBEN HOLDSWORTH mewngofnodwch a gadael i bawb wybod.