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Myelofibrosis Treatment

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Dear Warrington and Halton Teaching Hospitals NHS Foundation Trust,

The following questions are being asked for on behalf of Novartis. The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.
A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).
b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.
A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?
b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:
• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

FOI (WARRINGTON AND HALTON TEACHING HOSPITALS NHS FOUNDATION TRUST), Warrington and Halton Teaching Hospitals NHS Foundation Trust

Freedom of Information Act 2000 – Ref No: 22-356

Thank you for your request for Trust information under the provisions of the Freedom of Information Act 2000. I can confirm that the Team is currently attending to your request. A member of the team will respond within the statutory timescale which is currently 20 working days.

If applicable, we will inform you if any of your requested information is exempt from release along with any fee required. We may require further detail from you to assist us in searching for the information you have requested. You may therefore be contacted in due course if it is necessary to clarify any part of your request.

If you wish to discuss any aspect of your request, please do not hesitate to contact us quoting the reference number above.

Kind Regards

Freedom of Information Assistant

Warrington and Halton Teaching Hospitals NHS Foundation Trust
Kendrick Wing, Warrington Hospital, WA5 1QG

Email: [email address]

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FOI (WARRINGTON AND HALTON TEACHING HOSPITALS NHS FOUNDATION TRUST), Warrington and Halton Teaching Hospitals NHS Foundation Trust

1 Attachment

 

Dear Sir/Madam

 

Freedom of Information Act 2000 – Ref No: 22-356

 

Response to request dated 23/08/2022 made under the Freedom of Information
Act 2000

 

Questions and Response:

 

 

Q1. Does your trust treat myelofibrosis? If not, which other trust do you
refer these patients to? Yes

 

Q2. A) Please provide the total number of patients treated in the last 6
months (or the latest 6 months data you have available) for myelofibrosis
(ICD10 code D47.4). 8

 

b) How many of these patients were above age 65? 5 

 

Q3. How many myelofibrosis patients were treated in the past 6 months with
Ruxolitinib? 6

 

Q4. A) How many myelofibrosis (ICD10 code D47.4) patients has your trust
diagnosed in the past 3 years? 23

 

b) Of these patients, how many were treated in the past 6 months (or the
latest 6 months data you have available) with:

 

• Hydroxyurea 0

 

• Fedratinib 0

 

• Received No Treatment 2

 

If you are dissatisfied with the way your request for information has been
handled you can contact the Director of Communications and Engagement to
request a review by writing to:

Communications Team, Kendrick Wing, Warrington Hospital, Lovely Lane,
Warrington, WA5 1QG or email to [1][email address]

 

If you are dissatisfied with the outcome of this internal review you can
submit a complaint to the Information Commissioner’s Office. You can do
this by writing to:

FOI / EIR Complaints Resolution, Information Commissioner's Office,
Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF. Alternatively
you can complete an electronic complaints form and submit it to the
Information Commissioner’s Office via email. I have included a link below
for your convenience which explains how to complain to the Information
Commissioner’s Office.

[2]https://ico.org.uk/

 

Re-use of Public Sector Information Regulations 2005

 

The supply of information under the Freedom of Information Act is intended
to be for personal use only and does not automatically give the recipient
the right to commercially re-use it, for example, the right to publish it
or make it available to a wider audience [SI 2005 No: 1515 4(1)].

 

The Trust provides information under the Freedom of Information Act in
line with the template [3]Open Government Licence for public sector
information. Should you wish to re-use any information in line with this
Licence then you are not required to take any further action.

 

The Open Government Licence allows you to re-use information freely and
flexibly, with only a few conditions. If you wish to re-use information
outside of the Licence terms then please inform the Trust as unauthorised
re-use may be in breach of copyright law.

 

Kind Regards

 

Freedom of Information Assistant

 

Warrington and Halton Teaching Hospitals NHS Foundation Trust

Kendrick Wing, Warrington Hospital, WA5 1QG

 

Email: [4][email address]

 

 

 

[5]Shape Description automatically generated

 

 

 

 

 

 

 

 

 

 

 

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