Information regarding Jakavi

Sussex Community NHS Foundation Trust did not have the information requested.

Dear Sussex Community NHS Foundation Trust,

I would like to request information for the below questions.

The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.

A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).

b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.

A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?

b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:

• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

FREEDOMOFINFORMATION (SUSSEX COMMUNITY NHS FOUNDATION TRUST), Sussex Community NHS Foundation Trust

Dear Ben Holdsworth,

 

We have received your email dated 01^st April 2022 requesting information
under the Freedom of Information Act 2000.

 

Your request is being dealt with and you will be responded to within
twenty full working days of receipt.

 

Please remember to quote the reference number above in any future
communications.

 

Yours sincerely,

 

Freedom of Information Lead
Sussex Community NHS Foundation Trust

 

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FREEDOMOFINFORMATION (SUSSEX COMMUNITY NHS FOUNDATION TRUST), Sussex Community NHS Foundation Trust

Dear Ben Holdsworth,

 

Please find the below in response to your Freedom of Information request
dated 01^st April 2022.

 

 

Sussex Community NHS Foundation Trust (SCFT) is a Community Health
Provider and not an Acute NHS Trust. As such, we do not provide or manage
any Oncology Services, and therefore do not hold the information
requested. It is likely that the information requested is held by the
Acute NHS Trusts. Please find below contact details for the Acute NHS
Trusts in our local area:

 

Surrey and Sussex Healthcare NHS Trust:
[1]https://www.surreyandsussex.nhs.uk/about...

 

East Sussex Healthcare NHS Trust:
[2]https://www.esht.nhs.uk/about-the-trust/...

 

University Hospitals Sussex NHS Foundation Trust: [3][email address]

 

 

For information only: The cost to the NHS equated to responding to this
request is £25.00

 

Yours sincerely,

 

Freedom of Information Lead
Sussex Community NHS Foundation Trust

Brighton General Hospital | Elm Grove | Brighton | BN2 3EW

If you are dissatisfied with the outcome of your enquiry, you have the
right to appeal. Please contact the Head Information Governance, Sussex
Community NHS Trust, Brighton General Hospital, Elm Grove, Brighton BN2
3EW.

Please remember to quote the reference number above in any future
communications.

If you are still not satisfied with the outcome, you can write to:  The
Information Commissioner, Wycliffe House, Water Lane, Wilmslow, Cheshire
SK9 5AF - Telephone: 01625 545700.

 

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