Care.data programme promotional activities

Roedd y cais yn rhannol lwyddiannus.

Dear NHS England,

Please could I request the following about the care.data programme:

1. A log of social media activities undertaken to promote the care.data roll out.

2. The names of all national patient groups, charity organisations and voluntary sector organisations that discussions have been held with (to enable cascading of info) and the
dates of the meetings.

3. The names of the 350,000 charities and voluntary groups that have been asked to cascade the info to their members, with a copy of that request and any documentation enclosed to them as part of that communication.

4. The names of the regional websites that have run articles

5. A list of regional events which have been aimed at area teams and CCGs and the dates they were held.

Yours faithfully,

Lynn Wyeth

Contactus England (HEALTH AND SOCIAL CARE INFORMATION CENTRE), NHS England

Thank you for contacting NHS England.

 

Your Freedom of Information (FOI) request, which we received on 10 March
2014 has been allocated a reference number of SDR 224700.  Please quote
this reference in any further communication regarding this matter.

 

Your FOI request has been passed to the Case Management Team and a Case
Officer will acknowledge your request within two working days.  We will
respond to your FOI request within 20 working days in line with the FOI
Act 2000.

 

If you require any further information or wish to speak to someone about
your request, please contact NHS England at the email address and
telephone number shown below.

 

Yours Faithfully

 

 

NHS England

PO Box 16738 | Redditch | B97 9PT

0300 3 11 22 33

[1][email address]

[2]www.england.nhs.uk

 

dangos adrannau a ddyfynnir

FOI England (NHS ENGLAND), NHS England

Dear Ms Wyeth

 

Our reference: SDR-224700 - Acknowledgement

 

Thank you for your Freedom of Information (FOI) request dated 10 March
2014.

 

Please be assured that your request is being dealt with under the terms of
the Freedom of Information Act 2000 and will be answered within twenty
working days.

 

If you have any queries about this request or wish to contact us again,
please email [1][email address] and the message will be
forwarded appropriately. Please remember to quote the above reference
number in any future communications.

 

Please do not reply directly to this email. This message has been sent
from a central mailbox and incoming messages will not be received.

 

Yours sincerely,

 

Chloe Wilkins

Freedom of Information

NHS England

 

Tel: 0300 311 2233

Email: [2][email address]

Website: [3]www.england.nhs.uk

Address: NHS England, PO Box 16738, REDDITCH, B97 9PT

 

dangos adrannau a ddyfynnir

References

Visible links
1. mailto:[email address]
2. mailto:[email address]
3. http://www.england.nhs.uk/

FOI England (NHS ENGLAND), NHS England

Dear Ms Wyeth,

 

Re:      Freedom of Information request (Our Ref: SDR – 224700)

 

Thank you for your Freedom of Information (FOI) request dated 10 March
2014.

 

Your exact request was;

 

“Please could I request the following about the care.data programme:

 

1. A log of social media activities undertaken to promote the care.data
roll out.

 

2. The names of all national patient groups, charity organisations and
voluntary sector organisations that discussions have been held with (to
enable cascading of info) and the

dates of the meetings.

 

3. The names of the 350,000 charities and voluntary groups that have been
asked to cascade the info to their members, with a copy of that request
and any documentation enclosed to them as part of that communication.

 

4. The names of the regional websites that have run articles

 

5. A list of regional events which have been aimed at area teams and CCGs
and the dates they were held.”

 

NHS England holds some of the information you have requested. For your
convenience I have responded to each of your questions in turn.

 

1. A log of social media activities undertaken to promote the care.data
roll out.

NHS England does not hold a log of social media activities undertaken to
promote the care.data rollout.

 

 2. The names of all national patient groups, charity organisations and
voluntary sector organisations that discussions have been held with (to
enable cascading of info) and the dates of the meetings.

 

NHS England have engaged with a range of stakeholders including:

·         The Richmond Group, an alliance of patient charities;

·         The Association of Medical Research Charities;

The Wellcome Trust;

·         Asthma UK;

·         Diabetes UK;

·         The British Lung Foundation and the Genetic Alliance UK;

·         The British Heart Foundation;

·         Cancer Research UK;

·         National Voices;

·         Sense;

·         Mencap;

·         The British Medical Association (BMA);

·         The Royal College of General Practitioners (RCGP);

·         The BMA’s Patient Liaison Group;

·         The Information Commissioner’s Office;

·         Medical Defence Organisations;

·         The Royal College of Physicians;

·         The General Medical Council;

·         The Patients Association;

·         Healthwatch; 

·         Royal National Institute of Blind People (RNIB);

·         Action on Hearing Loss.

 

We have meetings organised with the International Alliance of Patient
Organisations with Homeless Link and are seeking to engage with Shelter
and Carers UK.

Members of the team have also attended NHS Values summits, Health and Care
Voluntary Sector Strategic Partners Programme working days, and expos,
such as EhI live in November 2013.

 NHS England is working with patients and professional groups including
the BMA, RCGP and Healthwatch to develop additional practical steps to
promote awareness with patients and the public, and ensure information is
accessible and reaches all sections of the community, including people
with disabilities.

 Dates of meetings

Stakeholders Date Title of meeting
     
Telecon with Sharmila Nebhrajani
Association of Medical  25/02/2014 Meeting with policy team
Research Charities 15/11/2013
23/12/2013 Telecon with policy team and
communications team
Note: Cancer Research UK, Rachel Merrett with policy leads
AMRC, Welcome Trust, BHF, 23/12/2013 from each of these together.
Academy of Sciences
Meeting with Sir Mark Walport -
27/02/2013 Dementia Better Research Champion
Wellcome Trust 23/12/2013 Group
Telecon with policy and
communications team
   
Diabetes UK  23/07/2013  Geraint Lewis and Anne Yates
British Lung Foundation 05/03/2013 Meeting: Tim Kelsey and Penny Woods
from British Lung Foundation
Genetic Alliance UK  12/2013  Geraint Lewis
 25/02/2013 Telecon
British Heart Foundation 06/03/2014 Telecon: Tim Kelsey (NHS England)
and BHF
Cancer Research UK 09/07/2013 Heart Matters - interview
National Voices 27/02/2014 Jeremy Taylor
   
19/11/2014 Telecon with BMA
12/11/2013 Telecon with policy team
20/02/2014 General Practitioner Committee
BMA meeting
11/03/2014 BMA/NHS England Meeting
27/02/2014 Meeting with Chaand Nagpaul: BMA
Meeting with the BMA and RCGP on
20/02/2013 care.data and the broader GP IT
strategy
21/03/2014 Meeting with Nigel Mathers & RCGP
06/03/2014 Meeting with Nigel Mathers & RCGP
28/02/2014 Meeting with Nigel Mathers & RCGP
06/02/2014 Call with Maureen Baker
14/01/2014 Quarterly Meeting: Maureen Baker and
RCGP Tim Kelsey
16/07/2013 RCGP
20/02/2013 GPC, RCGP and NHS Commissioning
Board meeting
19/12/2012 Breakfast with Clare Gerada at RCGP
headquarters
Academy of Sciences 23/12/2013 Rachel Merrett and policy team
   
18/07/2014 NHS England and ICO meeting on
Care.data
19/09/2014 NHS England and ICO meeting on
Care.data
14/11/2014 Telecon
ICO 05/12/2014 NHS England and ICO meeting on
Care.data
12/02/2014 NHS England and ICO meeting on
Care.data
21/02/2014 Telecon : Communications Campaign
12/03/2014 NHS England and ICO meeting on
Care.data
MDDUS 14/10/2013 Meeting with John Holden MDDUS
RCP 08/04/2014 Speech 'Why information is important
to the NHS'
  29/11/2014 Telecon : GP Guidance
     
Sense 19/02/2014 London at Mencap office for
accessibility meeting
Mencap 19/02/2014 London at Mencap office for
accessibility meeting
Action on Hearing Loss 19/02/2014 London at Mencap office for
accessibility meeting
RNIB 26/02/2014 30 minute telephone call to discuss
formats
27/02/2014 Care.data
Patients Association 09/07/2012 Meeting: Tim Kelsey & Katherine
Murphy (Patients Association)
09/04/2014 Quarterly meeting between HWE & NHS
England
11/03/2014 Meeting regarding Care.Data (Gemma
Hurley)
07/01/2014 Quarterly meeting between HWE & NHS
Healthwatch England
14/10/2013 Quarterly meeting between HWE & NHS
England
30/11/2012 Lunch Meeting: Anna Bradley and Tim
Kelsey
13/02/2014 Telecon : care.data
Grafton Group 30/01/2014 Meeting
EMIS 03/10/2013 Emis User Group Conference

  

 3. The names of the 350,000 charities and voluntary groups that have been
asked to cascade the info to their members, with a copy of that request
and any documentation enclosed to them as part of that communication.  

 

NHS England holds this information.

Information was included in the Patient and Public Voice Bulletin Health
and Care Voluntary Sector Strategic Partners Bulletin, which is enclosed.

 

The Health and Care Voluntary Sector Strategic Partners are national
organisations and umbrella bodies who act as a conduit to send out
information to their further networks around the country, creating a
ripple effect. The patient and public voice team in NHS England advise
that this network can reach 350,000 groups and organisations.

 

There are 21 voluntary sector strategic partners. Most partners are groups
or consortia of organisations so the number of individual Voluntary and
Community Sector (VCS) organisations directly involved is around 45.  

Of these, many are network or membership bodies e.g. National Voices has a
membership of around 250 health and care charities; AGE UK has a network
of about 150 federated members; the National Association for Voluntary and
Community Action (NAVCA) has a membership of approximately 200 members,
each if which has a membership of 100-500 members. Extrapolation of these
figures results in a communication network of approximately 50,000 groups
and organisations.

 4. The names of the regional websites that have run articles

 

NHS England holds this information.

 

Please find attached to this email an Excel spreadsheet titled “Media
Awareness” which provides the information you have requested.

 

 

5. A list of regional events which have been aimed at area teams and CCGs
and the dates they were held

 

·          23 September 2013 in Reading – Introducing care.data, uses,
challenges, support required - aimed at South of England Area Teams,
Clinical Commissioning Groups and Commissioning Support Units.

o 11 December 2013 in Newbury – Commissioner requirements and needs from
care.data - aimed at South of England Area Teams, Clinical
Commissioning Groups and Commissioning Support Units.

·         19 September 2013 at the Mercure Hotel Leicester

·         15 January 2014 in the Bevan Room, Cambridge.

 

 

London based meetings

2013:

·         Two regional workshops, one for providers on the subject of
hospital data; one about care.data generally to Clinical Commissioning
Groups.

·         Care.data was covered in presentations at 1 regional Quality and
Surveillance Group.

·         Care.data was also covered during three Commissioning Support
Unit Information Governance meetings

·         2 meetings with Area Team leads for primary care

 

2014:

·         Clinical Commissioning Group patient engagement leads: 2
meetings

·         NHS England senior Managers meeting, London region

·         Medical Directorate briefing

·         All staff meeting of NHS England region – includes area teams

·         1 Clinical Commissioning Group governing body

·         Meetings of Practice managers, by Clinical Commissioning Groups,
covering 5 boroughs

·         One patient group in one borough

 

I hope this information is helpful. However, if you are dissatisfied, you
have the right to ask for an internal review by writing to us, within two
months of the date of this letter, to:

 

NHS England

PO Box 16738

REDDITCH

B97 9PT

 

Email: [1][email address]

 

Please quote the reference number SDR-224700 in any future communications.

 

If you are not content with the outcome of the internal review, you have
the right to apply directly to the Information Commissioner for a
decision. The Information Commissioner’s Office (ICO) can be contacted at:

 

The Information Commissioner’s Office

Wycliffe House

Water Lane

Wilmslow

Cheshire

K9 5AF

 

Telephone: 0303 123 1113

Email: [2][email address].uk  

Website: www.ico.gov.uk

 

Please note there is no charge for making an appeal.

 

Please be aware that in line with the Information Commissioner’s directive
on the disclosure of information under the FOI Act, your request will be
anonymised and published on our website as part of our disclosure log.

 

Please do not reply to this email. It has been sent from a central mailbox
and incoming messages will not be received.     

 

Yours sincerely,

 

 

Chloe Wilkins

Freedom of Information

Customer Contact Centre

Transformation and Corporate Operations Directorate

 

NHS England

PO Box 16738 | Redditch | B97 9PT

0300 3 11 22 33

[3][email address]

[4]www.england.nhs.uk

 

dangos adrannau a ddyfynnir

References

Visible links
1. mailto:[email address]
2. mailto:[email address]
3. mailto:[email address]
4. http://www.england.nhs.uk/

FOI England (NHS ENGLAND), NHS England

2 Atodiad

Dear Ms Wyeth,

 

Re:      Freedom of Information request (Our Ref: SDR – 224700)

 

Further to my previous email, please find attached the documents which
should have been included originally. Please accept my sincere apologies
for any inconvenience I may have caused you by failing to attach these in
the first instance.

 

Yours sincerely

 

Chloe Wilkins

Customer Contact Centre Case Officer

NHS England

 

Tel: 0300 3 11 22 33

Email: [1]england.contactus@nhs.net  

Website: [2]www.england.nhs.uk

 

‘High quality care for all, now and for future generations’

 

From: FOI England (NHS ENGLAND)
Sent: 03 April 2014 13:14
To: [FOI #201373 email]
Subject: Freedom of Information request (Our Ref: SDR – 224700)

 

Dear Ms Wyeth,

 

Re:      Freedom of Information request (Our Ref: SDR – 224700)

 

Thank you for your Freedom of Information (FOI) request dated 10 March
2014.

 

Your exact request was;

 

“Please could I request the following about the care.data programme:

 

1. A log of social media activities undertaken to promote the care.data
roll out.

 

2. The names of all national patient groups, charity organisations and
voluntary sector organisations that discussions have been held with (to
enable cascading of info) and the

dates of the meetings.

 

3. The names of the 350,000 charities and voluntary groups that have been
asked to cascade the info to their members, with a copy of that request
and any documentation enclosed to them as part of that communication.

 

4. The names of the regional websites that have run articles

 

5. A list of regional events which have been aimed at area teams and CCGs
and the dates they were held.”

 

NHS England holds some of the information you have requested. For your
convenience I have responded to each of your questions in turn.

 

1. A log of social media activities undertaken to promote the care.data
roll out.

NHS England does not hold a log of social media activities undertaken to
promote the care.data rollout.

 

 2. The names of all national patient groups, charity organisations and
voluntary sector organisations that discussions have been held with (to
enable cascading of info) and the dates of the meetings.

 

NHS England have engaged with a range of stakeholders including:

·         The Richmond Group, an alliance of patient charities;

·         The Association of Medical Research Charities;

The Wellcome Trust;

·         Asthma UK;

·         Diabetes UK;

·         The British Lung Foundation and the Genetic Alliance UK;

·         The British Heart Foundation;

·         Cancer Research UK;

·         National Voices;

·         Sense;

·         Mencap;

·         The British Medical Association (BMA);

·         The Royal College of General Practitioners (RCGP);

·         The BMA’s Patient Liaison Group;

·         The Information Commissioner’s Office;

·         Medical Defence Organisations;

·         The Royal College of Physicians;

·         The General Medical Council;

·         The Patients Association;

·         Healthwatch; 

·         Royal National Institute of Blind People (RNIB);

·         Action on Hearing Loss.

 

We have meetings organised with the International Alliance of Patient
Organisations with Homeless Link and are seeking to engage with Shelter
and Carers UK.

Members of the team have also attended NHS Values summits, Health and Care
Voluntary Sector Strategic Partners Programme working days, and expos,
such as EhI live in November 2013.

 NHS England is working with patients and professional groups including
the BMA, RCGP and Healthwatch to develop additional practical steps to
promote awareness with patients and the public, and ensure information is
accessible and reaches all sections of the community, including people
with disabilities.

 Dates of meetings

Stakeholders Date Title of meeting
     
Telecon with Sharmila Nebhrajani
Association of Medical  25/02/2014 Meeting with policy team
Research Charities 15/11/2013
23/12/2013 Telecon with policy team and
communications team
Note: Cancer Research UK, Rachel Merrett with policy leads
AMRC, Welcome Trust, BHF, 23/12/2013 from each of these together.
Academy of Sciences
Meeting with Sir Mark Walport -
27/02/2013 Dementia Better Research Champion
Wellcome Trust 23/12/2013 Group
Telecon with policy and
communications team
   
Diabetes UK  23/07/2013  Geraint Lewis and Anne Yates
British Lung Foundation 05/03/2013 Meeting: Tim Kelsey and Penny Woods
from British Lung Foundation
Genetic Alliance UK  12/2013  Geraint Lewis
 25/02/2013 Telecon
British Heart Foundation 06/03/2014 Telecon: Tim Kelsey (NHS England)
and BHF
Cancer Research UK 09/07/2013 Heart Matters - interview
National Voices 27/02/2014 Jeremy Taylor
   
19/11/2014 Telecon with BMA
12/11/2013 Telecon with policy team
20/02/2014 General Practitioner Committee
BMA meeting
11/03/2014 BMA/NHS England Meeting
27/02/2014 Meeting with Chaand Nagpaul: BMA
Meeting with the BMA and RCGP on
20/02/2013 care.data and the broader GP IT
strategy
21/03/2014 Meeting with Nigel Mathers & RCGP
06/03/2014 Meeting with Nigel Mathers & RCGP
28/02/2014 Meeting with Nigel Mathers & RCGP
06/02/2014 Call with Maureen Baker
14/01/2014 Quarterly Meeting: Maureen Baker and
RCGP Tim Kelsey
16/07/2013 RCGP
20/02/2013 GPC, RCGP and NHS Commissioning
Board meeting
19/12/2012 Breakfast with Clare Gerada at RCGP
headquarters
Academy of Sciences 23/12/2013 Rachel Merrett and policy team
   
18/07/2014 NHS England and ICO meeting on
Care.data
19/09/2014 NHS England and ICO meeting on
Care.data
14/11/2014 Telecon
ICO 05/12/2014 NHS England and ICO meeting on
Care.data
12/02/2014 NHS England and ICO meeting on
Care.data
21/02/2014 Telecon : Communications Campaign
12/03/2014 NHS England and ICO meeting on
Care.data
MDDUS 14/10/2013 Meeting with John Holden MDDUS
RCP 08/04/2014 Speech 'Why information is important
to the NHS'
  29/11/2014 Telecon : GP Guidance
     
Sense 19/02/2014 London at Mencap office for
accessibility meeting
Mencap 19/02/2014 London at Mencap office for
accessibility meeting
Action on Hearing Loss 19/02/2014 London at Mencap office for
accessibility meeting
RNIB 26/02/2014 30 minute telephone call to discuss
formats
27/02/2014 Care.data
Patients Association 09/07/2012 Meeting: Tim Kelsey & Katherine
Murphy (Patients Association)
09/04/2014 Quarterly meeting between HWE & NHS
England
11/03/2014 Meeting regarding Care.Data (Gemma
Hurley)
07/01/2014 Quarterly meeting between HWE & NHS
Healthwatch England
14/10/2013 Quarterly meeting between HWE & NHS
England
30/11/2012 Lunch Meeting: Anna Bradley and Tim
Kelsey
13/02/2014 Telecon : care.data
Grafton Group 30/01/2014 Meeting
EMIS 03/10/2013 Emis User Group Conference

  

 3. The names of the 350,000 charities and voluntary groups that have been
asked to cascade the info to their members, with a copy of that request
and any documentation enclosed to them as part of that communication.  

 

NHS England holds this information.

Information was included in the Patient and Public Voice Bulletin Health
and Care Voluntary Sector Strategic Partners Bulletin, which is enclosed.

 

The Health and Care Voluntary Sector Strategic Partners are national
organisations and umbrella bodies who act as a conduit to send out
information to their further networks around the country, creating a
ripple effect. The patient and public voice team in NHS England advise
that this network can reach 350,000 groups and organisations.

 

There are 21 voluntary sector strategic partners. Most partners are groups
or consortia of organisations so the number of individual Voluntary and
Community Sector (VCS) organisations directly involved is around 45.  

Of these, many are network or membership bodies e.g. National Voices has a
membership of around 250 health and care charities; AGE UK has a network
of about 150 federated members; the National Association for Voluntary and
Community Action (NAVCA) has a membership of approximately 200 members,
each if which has a membership of 100-500 members. Extrapolation of these
figures results in a communication network of approximately 50,000 groups
and organisations.

 4. The names of the regional websites that have run articles

 

NHS England holds this information.

 

Please find attached to this email an Excel spreadsheet titled “Media
Awareness” which provides the information you have requested.

 

 

5. A list of regional events which have been aimed at area teams and CCGs
and the dates they were held

 

·          23 September 2013 in Reading – Introducing care.data, uses,
challenges, support required - aimed at South of England Area Teams,
Clinical Commissioning Groups and Commissioning Support Units.

o 11 December 2013 in Newbury – Commissioner requirements and needs from
care.data - aimed at South of England Area Teams, Clinical
Commissioning Groups and Commissioning Support Units.

·         19 September 2013 at the Mercure Hotel Leicester

·         15 January 2014 in the Bevan Room, Cambridge.

 

 

London based meetings

2013:

·         Two regional workshops, one for providers on the subject of
hospital data; one about care.data generally to Clinical Commissioning
Groups.

·         Care.data was covered in presentations at 1 regional Quality and
Surveillance Group.

·         Care.data was also covered during three Commissioning Support
Unit Information Governance meetings

·         2 meetings with Area Team leads for primary care

 

2014:

·         Clinical Commissioning Group patient engagement leads: 2
meetings

·         NHS England senior Managers meeting, London region

·         Medical Directorate briefing

·         All staff meeting of NHS England region – includes area teams

·         1 Clinical Commissioning Group governing body

·         Meetings of Practice managers, by Clinical Commissioning Groups,
covering 5 boroughs

·         One patient group in one borough

 

I hope this information is helpful. However, if you are dissatisfied, you
have the right to ask for an internal review by writing to us, within two
months of the date of this letter, to:

 

NHS England

PO Box 16738

REDDITCH

B97 9PT

 

Email: [3][email address]

 

Please quote the reference number SDR-224700 in any future communications.

 

If you are not content with the outcome of the internal review, you have
the right to apply directly to the Information Commissioner for a
decision. The Information Commissioner’s Office (ICO) can be contacted at:

 

The Information Commissioner’s Office

Wycliffe House

Water Lane

Wilmslow

Cheshire

K9 5AF

 

Telephone: 0303 123 1113

Email: [4][email address].uk  

Website: [5]www.ico.gov.uk

 

Please note there is no charge for making an appeal.

 

Please be aware that in line with the Information Commissioner’s directive
on the disclosure of information under the FOI Act, your request will be
anonymised and published on our website as part of our disclosure log.

 

Please do not reply to this email. It has been sent from a central mailbox
and incoming messages will not be received.     

 

Yours sincerely,

 

 

Chloe Wilkins

Freedom of Information

Customer Contact Centre

Transformation and Corporate Operations Directorate

 

NHS England

PO Box 16738 | Redditch | B97 9PT

0300 3 11 22 33

[6][email address]

[7]www.england.nhs.uk

 

dangos adrannau a ddyfynnir

References

Visible links
1. mailto:[email address]
2. http://www.england.nhs.uk/
3. mailto:[email address]
4. mailto:[email address]
5. http://www.ico.gov.uk/
6. mailto:[email address]
7. http://www.england.nhs.uk/