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Myelofibrosis Treatment

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Dear Alder Hey Children's NHS Foundation Trust,

The following questions are being asked for on behalf of Novartis. The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.
A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).
b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.
A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?
b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:
• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

info.gov, Alder Hey Children's NHS Foundation Trust

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FOIRequests, Alder Hey Children's NHS Foundation Trust

Dear Mr Holdsworth

Thank you for your request for information under the Freedom of Information Act 2000.

Your request will be dealt with in line with Trust policy and national guidelines and a response will be sent to you in no more than 20 working days.

Regards

Information Governance Team
Alder Hey Children's NHS Foundation Trust

[Alder Hey Children's NHS Foundation Trust request email]

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FOIRequests, Alder Hey Children's NHS Foundation Trust

3 Attachments

Dear Mr Holdsworth,

 

Please find attached a response to your recent Freedom of Information
request.

 

Regards

 

Information Governance Team

Alder Hey Children’s NHS Foundation Trust

Liverpool Heart & Chest Hospital NHS Foundation Trust

0151 600 1845

[1]signature_2121820037

 

 

References

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FOIRequests, Alder Hey Children's NHS Foundation Trust

3 Attachments

Dear Mr Holdsworth,

 

Please find attached a response to your recent Freedom of Information
request.

 

Regards

 

Information Governance Team

Alder Hey Children’s NHS Foundation Trust

Liverpool Heart & Chest Hospital NHS Foundation Trust

0151 600 1845

[1]signature_2121820037

 

 

References

Visible links

We don't know whether the most recent response to this request contains information or not – if you are BEN HOLDSWORTH please sign in and let everyone know.