ABA/CABAS schools 100K PA for what? Disability Discrimination

Dear Sir or Madam,

How many Children sent to 'ABA' or 'CABAS' schools have been
successful transferred to mainstream schools since January 1st 1998
- November 1st 2009 please, this is referring to children who no
longer need or never needed support after 'ABA' home programs or
schools-

(Too many schools that are deemed fit for learning disabled
children, 'ABA' schools, rate a one-size-fits-all, rote
learning system, and most have not helped or enabled children
to transfer to mainstream schools (as is meant to be a goal of
ABA schools) despite the pedagogy and repetition that is
Pavlovian, it is full of meaningless data- taking. For example,
some children have been at such schools for 10 years + and
still cannot speak, read or write and remain in nappies. ABA
schools cost approx 80-100K per child per year (transport and
escort included) The schools should broaden their scope to
include all approaches known (such as floor-play and
psychological help for children as well as counselling where
appropriate) and not to expect INSTANT responses - to do so
equates to nothing less than cruelty and eugenics.

How is it possible for children to instantly respond to instant
reinforcement if the learning disabled children suffer 'CAPD' or
suffer white matter ( have a slower information processing
neurological system than normally responsive children?)

If the children are behaviourally challenged only, why are they
deemed 'learning disabled'? Reflexes are an important part of 'ABA'
- and reflexes are not normal in many SLD children. This makes ABA
completely inappropriate as an education. In fact is is cruel in
many cases.

FMri scans can determine the difference, isn't it wiser to have
children have an fairly unintrusive fMri scan so as to assist all
plus Educational Psychologists to view the actual evidncence to see
if a child is learning- disabled or psychologically disturbed?

There must be discrimination between the two as SLD (severe
learning disabled) children are suffering and unable to respond to
ABA 'mands'or reach their potential appropriately and they are
being underestimated, therefore ABA is damaging self-esteem in
these children as well as wasting up to 100k per year per child at
these schools, please stop this horror for 'slower' children and
address behaviourally impaired children via their parents as well
as educationally

Yours faithfully,

Liz R

Dear Department for Children, Schools and Families,

Dear Nigel Fulton

Thank you for the reply.

I'm sorry but it does need to be considered by an independent panel
with this reply please- and I would appreciate the independent
panel considering this (as I put to the PM Brown today in a
proposed petition)

Your petition reads:

We the undersigned petition the Prime Minister to Stop
Professionals Labeling Children 'Autistic' For Profit

There are (approx) 500 known chromosomal abnormalities that
display autistic behaviours. (Quote from www.rarechromo.org) Each
chromosomally abnormal (in
this instance, read as ‘dis-abled’ as in ‘cannot live without
24hr care for life) - each case is unique. Autism is an
umbrella term. I’ve seen children with ADHD diagnosed autistic,
I’ve seen children with Fragile X diagnosed autistic- the word
‘autism’ actually is identifying a set of behaviours, in my
opinion it doesn’t exist as a single disease and is being
misdiagnosed by people cashing in on it, or for people wanting
it as label for one reason or other- genetic medicine is
improving exponentially, and soon ‘white matter’('Rain-Man')
and genetic abnormalities can be detectable from
emotional/nervous illness via fMri and mFish tests as can
mulitiple-discliplinary testing across a long period of time to
assess the unique special-needs of the unique child.

I was the first person to gain public funding for ABA/Lovass
provision for my 'autistic' son in the UK via a SENDIST Tribunal,
see case ref Lucy V Kensington & Chelsea- that case made legal
history as I won a 2nd Tribunal having lost the first- due to the
council, RBKC, in a letter to me, having 'agreed in principle' to
funding to the then home-program - they had violated a core tenet
of the Childrens' Act ('paramount interest of the child must always
come first')- my then representative- Peter Bibby- a non-practising
but practicing barrister (funding obtained via LSC FROM IPSEA) went
to high court to present this to a judge, whom apparently said it
had been illegal for Mr.Bibby to approach the High Court (bench) as
he is/was not of the bar - however, the kindness of the judge
allowed the second tribunal in any event- and it has been to my
sons' and my horror that it was allowed- that is my opinion alone
on the personal matter.

I am attempting here, to clarify for you, my knowledge of this
matter, having been trained by 5 consultants since 1996 to 2001 to
'supervisor/consultant behaviourist' level - and having been left
to employ, train and hire 'therapists' myself as well as having to
manage time-sheets and all manner of other things- In short, I had
been lied to about the program and all it entailed.

I introduced many of the consultants and other professionals
involved, Neil Martin to Peter Bibby to PEACCH to everyone - I
introduced all of them, and it's my belief this was a grave mistake
and the children have been used as guinea-pigs.

The first day of the 'Lovaas' program I had to witness my son being
thrown about, yelled at and pinned down - I was told to 'go into
the garden and get drunk so you don't hear him (my then 4 year old)
screaming' by a self-styled 'supervisor' from Birmingham, Kim
Fellows, who used and American accent that was false, she said 'as
it helps the kids more' - I wanted to inform the NSPCC and told
them of this 'PEACCH'was the name of our then small group (parents
who had begun 'Lovaas')

I had been assured everything was based on positive reinforcement -
it was not - I have fought a long, bitter battle to have 'aba'
changed to suit individual children and it has been considerably
altered -but it largely remains that which is simply as stated- a
pile of meaningless data that - in my sons' case- has not worked-
after 13 years of ABA he remains in nappies and non-verbal-this
costs up to and sometimes beyond 100k per year per child and is
another phrase for 'BEHAVIOURAL CORRECTION FACILITY' (one of the
consultants from Florida had worked in a young mans Prison, his
name is Vince Carbone) or eugenics- some children simply cannot
process this information of 'instant reinforcement'.

Here is one example of one disorder, there are many, such as 'white
matter' (Rain Mans' problem) these problems can be seen on fMri
(scan) and tested for using fIsh and mFish (example of genetic
tests) - 'psychological' autism probably translates to child abuse
and is a trauma disorder- children shouldn't be treated with
repetative commands if they are traumatised either- psychiatrically
ill children need comfort and nuture- not forced to do the same
puzzle 100 times over every day as my son was.

Here is one science paper (in progress)

Life can be worth living in locked-in syndrome.

Lulé D, Zickler C, Häcker S, Bruno MA, Demertzi A, Pellas F,
Laureys S, Kübler A.

Institute of Medical Psychology and Behavioral Neurobiology,
University of Tübingen, Tübingen, Germany. [email address]

The locked-in syndrome (LIS) describes patients who are awake and
conscious but severely deefferented leaving the patient in a state
of almost complete immobility and loss of verbal communication. The
etiology ranges from acute (e.g., brainstem stroke, which is the
most frequent cause of LIS) to chronic causes (e.g., amyotrophic
lateral sclerosis; ALS). In this article we review and present new
data on the psychosocial adjustment to LIS. We refer to quality of
life (QoL) and the degree of depressive symptoms as a measure of
psychosocial adjustment. Various studies suggest that despite their
extreme motor impairment, a significant number of LIS patients
maintain a good QoL that seems unrelated to their state of physical
functioning. Likewise, depression is not predicted by the physical
state of the patients. A successful psychological adjustment to the
disease was shown to be related to problem-oriented coping
strategies, like seeking for information, and emotional coping
strategies like denial--the latter may, nevertheless, vary with
disease stage. Perceived social support seems to be the strongest
predictor of psychosocial adjustment. QoL in LIS patients is often
in the same range as in age-matched healthy individuals.
Interestingly, there is evidence that significant others, like
primary caregivers or spouses, rate LIS patients' QoL significantly
lower than the patients themselves. With regard to depressed mood,
ALS patients without symptoms focus significantly more often on
internal factors that can be retained in the course of the disease
contrary to patients with depressive symptoms who preferably name
external factors as very important, such as health, which will
degrade in the course of the disease. Typically, ALS patients with
a higher degree of depressive symptoms experience significantly
less "very pleasant" situations. The herein presented data strongly
question the assumption among doctors, health-care workers, lay
persons, and politicians that severe motor disability necessarily
is intolerable and leads to end-of-life decisions or euthanasia.
Existing evidence supports that biased clinicians provide
less-aggressive medical treatment in LIS patients. Thus,
psychological treatment for depression, effective strategies for
coping with the disease, and support concerning the maintenance of
the social network are needed to cope with the disease. Novel
communication devices and assistive technology now offers an
increasing number of LIS patients to resume a meaningful life and
an active role in society.

PMID: 19818912 [PubMed - in process]

Please check APHASIA and CAPD ('central autidory processing
disorder')

I also have some other scientific papers to support all this and am
happy to assist wherever possible, please feel free to contact me.

Yours faithfully,

Liz Lucy R

Dear Department for Children, Schools and Families,

reference number 2009/0102956

previous correspondence has been allocated the reference number
(Nigel Fulton) 2009/0097117.

Yours faithfully,

Liz R

Dear Department for Children, Schools and Families,

I think two internal reviews are required, as you've clearly
pointed out, thank you

Yours faithfully,

Liz R

Dear Department for Children, Schools and Families,

it is and was being handled with neglect of duty of care towards
vulnerable children in my view, I believe it violates the Childrens
Act. Bureaucracy is putting pedantry of vague legal points before
the best interests of children, that's a crime. That's also why I
request an internal review- see original request also and your own
reply - two reviews if not 3 perhaps- time wasting where children
is concerned is inexcusable and yet so often abused by council and
especially legal staff - harming children and families in the
process without any signs of remorse

Yours sincerely,

Liz R

Dear Department for Children, Schools and Families,

thank you; please understand that those who direct you not to
understand or assert that the Childrens' Act takes primacy over
FOIA is actually legally in the wrong

Yours Sincerely,

Liz R

Dear Department for Children, Schools and Families,

Thank you for your kind and considered reply.

In my view, it is still not legal of your department not to hold
this information or for this information not to be available via
your department. Thank you for your trouble in any event

Yours sincerely,

Liz R